Sadbh’s update – November 7th 2013

Sadbh had a very good night and slept later than usual.

Her day was much like yesterday however Ali-Baba came by to hang out and spend some time with her granddaughter.

They had a fantastic time together and Ali-Baba did a great job at tiring Sadbh out.

As usual Sadbh did not want us to do trach care. She only wanted to play with her toys and insisted that she was not tired and did not want trach care.

After some reasoning she eventually allowed us to manage trach care and before we finished she was fast asleep.

Later in the evening a long time friend of Katie’s came by for a visit and Sadbh was very happy to meet her.

Sadbh had already eaten dinner but still joined us when we sat down to our dinner. By now she was getting wired and very energetic.

Bedtime was not easy and it took almost an hour to get Sadbh off to sleep.

New photos.

Photos from November 7 2011.

Photos from November 7 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 6th 2013

Sadbh slept until half past six and lay in bed for another ten minutes before getting up. She was in a great mood and excited to see both Katie and me there in to greet her.

She had a fun packed day and spent it playing and doing arts and crafts.

Trach care was a little earlier than usual since I had an appointment at her regular trach care time. She was a great sport and completely cooperated. 

Naptime was later than usual and she slept for almost an hour and a half waking up in a great mood.

She was quite giddy when it came to bedtime so it took a while to get her off to sleep. However she and Mommy got some serious snuggles in before she finally fell asleep.

New photos.

Photos from November 6 2011.

Photos from November 6 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 5th 2013

Sadbh woke up bright and early and was ready for a busy day.

She woke up several times throughout the night but thankfully always went back to sleep.

Crystal was able to cap Sadbh’s trach for 42 minutes, which is a great accomplishment for recent nighttime trach capping.

Our night nurse is quite noisy and wakes both Katie and me up at least four or more times throughout the night. I’m surprised that Sadbh sleeps as well as she does considering.

We had originally scheduled to manage Sadbh’s monthly trach change last week however our medical supply company shipped Sadbh’s equipment a week late, specifically her replacement trach.

It arrived last night so we planned on changing it out today during trach care.

We worked on keeping Sadbh very busy and active this morning in an effort to tire her out. It worked out and after a little stand off she was soon sleeping. I think it was the promise of ice cream that did the trick.

Trach care went well and so did trach change. She did not flinch when I put in the new one. Surprisingly I felt a little resistance when I pushed the new trach in threw her stoma, however it went in fine and she had no problems breathing.

Sadbh slept for almost two hours and immediately asked for ice cream as soon as she woke up.

The rest of the day was spent building castles and playing hide and seek.

During dinner she had both Katie and me in stitches when she pretended that her taco shells were her ears.

New photos.

Photos from November 5 2011.

Photos from November 5 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 4th 2013

Sadbh woke up around twenty past six this morning and was so happy to see Mommy sitting there. She was ready for a big snuggle and once she was satisfied it was time for the fun and games to start.

We had a great morning and managed to get out for a nice long walk up to Capitol Hill.

She walked most of the way and only needed to be carried occasionally.

Unfortunately, she soon started to get tired and grouchy and wanted everything she that she saw. At one point we came across a few rubber ducks in a shop window and Sadbh would not leave without “her” ducks. I tirelessly explained that the ducks did not belong to her and that they were on display and not for sale. Sadbh responded with “why not” to each of my attempts.

Despite her fussiness she was in a good mood for the walk home. Halfway home I realized that she was wearing big girl pants and wanted to go to the potty. She said that she could hold it in until we arrived home and I was very pleased when she managed to do so.

Sadbh was exhausted when we arrived home so we gave her a quick bath and got her ready for trach care.

She put up her usual fight but soon gave in and allowed Jenna and I to get the job done.

It seemed that she was going to drift off to sleep afterwards but she hung out playing and reading books in her cot for the next hour or so.

When Mommy arrived home Sadbh was eating dinner. You could tell that she was very tired as she was getting quite delirious. By half past five she was bouncing off the walls and we were very nervous that she would need to go to bed a lot sooner than usual.

Both Katie and I spent the next couple of hours playing and having fun with Sadbh and managed to keep her awake and somewhat sane until it was time for bed.

As we prepared her for bed she passed out in the armchair next to her cot.

New photos.

Photos from November 4 2011.

Photos from November 4 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 3rd 2013

Despite the clocks changing last night and gaining an extra hour sleep, Sadbh slept right through until 6am. She was in a very good mood when she woke up and wanted to join Mommy in bed for a snuggle.

We tried to get her to go back to sleep but there was no chance of that happening.

It was a beautiful sunny day and we had hoped to get out to enjoy the day however Katie and I had a lot of work to do around the house.

Sadbh did not mind and had a great time playing with her toys.

She even got to Skype with my family back in Cork and as soon as she saw Granddad on the screen she responded with, “Granddad, I miss you so much”.  She then called out for Nana and when Nana came on, she was quick to tell her she missed her too.

She’s been fighting us on trach care in the past few weeks but once we get her swaddled up she usually gives in. It was the same today and moments after we finished up she fell asleep in Mommy’s arms.

In the afternoon Ali-Baba stopped by to play with Sadbh. Sadbh was over the moon to see her and they both had a lot of fun.

By 7pm Sadbh was delirious and was bouncing off the walls. We waited as long as possible before putting her to bed but had to give in by 7:30. She was soon sleeping soundly in Mommy’s arms.

New photos.

Photos from November 3 2011.

Photos from November 3 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 2nd 2013

Sadbh slept great and woke up at 4:45. She and Danielle spent the next hour playing and hanging out.

Just before our alarm went off we could hear Sadbh calling up the stairs for us to join in on the fun.

It was obvious that she was still quite tired so as soon as Danielle finished up Sadbh took over our bed and eventually fell asleep for a couple of hours.

It was a very windy day and Sadbh was so excited looking out into the back garden at the trees and leaves in the wind. Not long after breakfast we lost power. Sadbh was worried at first and kept looking for the power.

We had a great morning playing together and when it came time for Sadbh’s nap she was ready to go to sleep.

After a relaxing bath we got her ready for trach care and as soon as we were done with that she snuggled up with Mommy until she fell asleep.

In the evening we headed down to Ikea to get a few things. The last time we were in Ikea was the evening before Sadbh was born to get Sadbh’s bedroom furniture and Sadbh was eager to get out. Katie’s contractions had started but thankfully we were able to get home so she could rest up before all the excitement of the next day.

Sadbh enjoyed Ikea, more so than Mommy and me. Like the last time we could not wait to get out of there, however Sadbh wanted to buy half the store.

New photos.

Photos from November 2 2011.

Photos from November 2 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 1st 2013

Sadbh had a very restless night and according to her nurse she was crying and kicking in her sleep.

She woke up at 5:45 in a very good mood and was very chatty with Crystal.

Jenna was feeling much better so she came back to work today. Sadbh was happy to see her but not so keen to see Mommy leaving for work.

All in all we had a great morning out hunting for spiders and walking through the neighborhood.

When it came time for trach care Sadbh was completely wiped out and fell asleep not long after we started. She slept soundly for a couple of hours and woke up recharged and full of energy.

Once Mommy arrived home we headed over to West Seattle for dinner with uncle Neil. Sadbh was surprisingly well behaved and was very happy hanging out.

Bedtime was very easy and Sadbh was full of giggles and snuggles before falling asleep.

New photos.

Photos from November 1 2011.

Photos from November 1 2012.

All the best,

Wayne, Katie and Sadbh.