Sadbh’s update – November 14th 2013

Sadbh slept in again this morning and woke up well rested. Crystal was unable to cap Sadbh’s trach during the night, however Sadbh still got a good night sleep.

Ali-Baba came by this morning and Sadbh could not wait for the fun and games start. They had a great time and by the time Ali-Baba left Sadbh was pooped and ready for a nap and trach care.

Trach care came easy today but Sadbh would not take a nap.

Lately Sadbh has been doing trach care on us. Today she did it for Ali-Baba, Jenna and after her nap she did it for me. It’s so funny to watch how organized she is when it comes to getting everything set up and how meticulous she is in her cleaning.

Obviously she is not as detailed as we are when we manage trach care on her, but it’s quite the spectacle all the same.

Bedtime came easy tonight as Sadbh was exhausted after her long day.

New photos.

Photos from November 14 2011.

Photos from November 14 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 13th 2013

Sadbh wore her trach cap for 58 minutes in one session during the night and her heart rate stayed at her normal rate for when she’s sleeping.

Eventually she got a little restless so Crystal took it off and replaced it with her trach guard.

She woke up in a great mood around half six and we headed upstairs to see Mommy.

Sadbh had a play date with Conor and Aibhín today and was so excited.

Usually the kids are a little shy when they first meet up but today they got over themselves fairly quickly and got stuck into playing with Conor and Aibhín’s toys.

It was a fun couple of hours and just before we left Conor’s nana, Marion read a book to the three kids.

Sadbh was very sad to leave and did not want to go. We promised her another play date for next week.

Trach care went well and after half an hour or so Sadbh was fast asleep.

It was good to see her get some rest and she had such a busy morning.

She woke up full of energy so the rest of the evening was spent having fun.

It took a while to get her to sleep this evening but soon she was sleeping her little head off.

Sadbh hit a new trach cap record today and including tonight she capped for a total of twelve hours and ten minutes.   Her previous record was twelve hours and 5 minutes on Oct 26, 2013.

                       

New photos.

Photos from November 13 2011.

Photos from November 13 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 12th 2013

Sadbh slept like a log and woke up well rested after 7. It was all systems go and Sadbh was ready for a fun day.

The weather started off bad so we were house bound for the day.

Trach care went well but Sadbh would not sleep afterwards. She bounced around in her cot for a while and about an hour later she finally fell asleep.

The rest of the evening was spent playing and reading up on some of Sadbh’s German books. She was even able to repeat some of the lines after Mommy read them out to her.

Just before bedtime she was looking at photos of my cousin’s new baby and she said “that’s my friend, wow!” Very cute.

New photos.

Photos from November 12 2011.

Photos from November 12 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 11th 2013

Sadbh had a very good night and woke up happy to see Mommy next to her bed.

When it came time for Mommy to go to work Sadbh was extremely upset and would not let her go. It took a great effort to calm her down and to get her back into a good mood again.

It was a lovely morning so we walked up to Capitol Hill to get the shopping. Sadbh took her time so it was a very slow walk. Regardless, it was a good walk and we all enjoyed being out in the fresh air and sunshine.

Sadbh put up her usual fight with trach care and refused to sleep afterwards. Thankfully, she was happy hanging out in her cot for a while.

We had a fun evening playing ghosts and chasing each other around the house.

At one point she did something wrong and could tell that I was not happy with her. A few minutes later she came up to me, gave me the biggest hug, climbed up and said “I love you daddy”. And then smiled and said “are you happy?”

Oh no, we have a serious player on our hands.

When Mommy arrived we hid behind the garden fence and frightened the life out of her when she stepped out of the car.

Sadbh was wrecked tired when it came time for bed and was out cold in no time at all.

New photos.

Photos from November 11 2011.

Photos from November 11 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 10th 2013

Sadbh slept great and woke up moments after Danielle’s shift ended.

She was eager to get upstairs to Mommy but I convinced her to hang out for an hour to allow Mommy to get some well-deserved sleep.

As soon as Mommy woke up we headed upstairs and Sadbh got to snuggle with both of us for a while.

Sadbh really wanted a chocolate chip cookie for breakfast so Mommy decided to give her one on condition that she ate her breakfast first. Unfortunately, Mommy gave her the cookie with her breakfast so you know what got eaten and what did not.

We decided to get trach care out of the way early in the day so we could head over to Green Lake for a walk. Sadbh originally put up a fuss but soon gave in and we were able to get trach care done without any problems.

When we arrived at Green Lake Mommy popped into a café to get a treat for Sadbh. Sadbh was all excited when she got her ginger bread man and could not wait to taste it.

A few minutes later Sadbh was fast asleep with as she held onto her gingerbread man.

An hour or so later Sadbh woke up just as we were getting back into the car. The first thing out of her mouth was “where is my treat?”.

Nothing get’s past Sadbh, that’s for sure.

After dinner the three of us hung out reading some of Sadbh’s favorite books. She was so comfy sitting between Katie and me and it was a perfect way to end the weekend.

New photos.

Photos from November 10 2011.

Photos from November 10 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 9th 2013

Sadbh had quite the night. She woke at 1:30 and immediately wanted Mommy. Unfortunately, Danielle gave in and after unhooking and turning off all of Sadbh’s equipment she allowed Sadbh to call up the stairs for Mommy to come down.

Katie usually sleeps with one eye open and with the baby monitor right beside her. She was watching all along and was quick to get down to Sadbh.

It did not take long for Katie to get Sadbh all reconnected to her equipment and before Sadbh knew what was going on she was fast asleep yet again.

She slept soundly for the rest of the night and did not wake until 7:45.

Cormac and Clodagh were already awake and out playing in the living room.

The kids had a fantastic morning playing however there were a few meltdowns along the way.

Sadbh was sad to see her two friends leave but it was soon time for her nap and trach care.

The rest of Sadbh’s day was lazy. We had planned to go for a walk but the weather had turned bad. Instead we headed up to Capitol Hill for dinner. Sadbh was delighted to get out of the house and was fascinated with all the deer heads mounted to the walls around the restaurant. It was quite eerie but she was not fazed and kept calling them Rudolph.

New photos.

Photos from November 9 2011.

Photos from November 9 2012.

All the best,

Wayne, Katie and Sadbh.

Sadbh’s update – November 8th 2013

Sadbh had a very restless night and woke up in a good mood close to 7am this morning.

She had an appointment with her cranial sacral doctor, Dr. Cavanaugh first thing this morning so it was a mad rush to have breakfast and get ready for her visit.

This was the first Dr. Cavanaugh visit without Mommy and Sadbh was not so keen. It took a lot of talking to get her to cooperate.

Dr. Cavanaugh noticed that her upper muscles were not as tense as previous visits and mentioned that it seemed that she was not working so hard to breathe.

It was a cool but pleasant day so we headed out for a walk as soon as we got home. Sadbh was happy to be out since she’s been cooped up all week. We headed to Nora’s Woods and it was such a great walk. Sadbh enjoyed her hike and by the time we arrived home she was getting very tired.

Trach care went well but Sadbh would not go to sleep. She fought us hard for almost two hours and we finally gave in.

Caity, her nurse supervisor, came by to recertify Sadbh and Sadbh was so excited to see her. She showed off her new tent and kept giving Caity hugs.

Sadbh was very excited as her friend Clodagh was coming over for a sleep over. It was Sadbh’s first ever sleep over and she could not stop talking about it all day.

Clodagh arrived around 4 with her little brother Cormac and Sadbh almost crashed through the window when she saw them arrive outside.

Clodagh was also quite excited and had packed her suitcase the evening before all by herself.

Needless to say the three kids had a fantastic evening. I was surprised with how crazy the house was all of a sudden but the kids were having such a wonderful time I could not help but join in.

After Katie arrived home the kids got busy baking cookies.

They obviously did not need the sugar but it kept them going well past their bedtime.

It took a while to get everyone to bed but soon the house was quiet and we were able to relax for a while.

New photos.

Photos from November 8 2011.

Photos from November 8 2012.

All the best,

Wayne, Katie and Sadbh.