Sadbh refused to wear her trach cap again last night
but slept well until quarter past seven. She was sitting up waiting for Mommy
to come in when I popped my head in the door. She wanted Mommy and not me so I
put on one of her hats and crawled in like a mouse scurrying around her room,
much to her delight. Eventually I made my way to her bed and started nuzzling
her belly when all of a sudden she let out the biggest fart ever. The two of us
burst out laughing and that’s how our day started.
Sadbh had her monthly nurse supervisor
recertification visit today and she was happy to see Caity when she arrived.
I gave Caity the most recent update on Sadbh’s
nighttime capping and we also chatted about things in general. When I told her
the news about Katie expecting she admitted that she already knew as Sadbh had
told her a month ago during her last visit. No secrets with Sadbh around. Too
funny.
Sadbh’s stroller has been an important asset as it
has neatly stored and carried all her portable medical equipment for the past
three plus years. The frame snapped a few weeks ago and I was able to
temporarily bind it together so we could keep using it until we bought a
replacement.
Even though the warranty had expired I figured it was
worth a shot calling the customer care number for the manufacturer to see if
they had any advice. As luck would have it they shipped a replacement frame at
no cost since the weld that snapped could not be repaired. The replacement
arrived today and both Sadbh and I were over the moon. She kept talking about
how nice and shiny it was and then she became obsessed with popping the bubble
packaging that the frame shipped in.
As long as Sadbh has a trach we will be hauling her
portable medical equipment around and since all her equipment combined weighs
over 36lbs we will be using her stroller. I suppose we should expect to get
another three or so years out of this new one.
Mommy came home a little earlier than usual so we
could take Sadbh to her acupuncture appointment. Our last visit was in March
and in the car today Sadbh started talking in detail about the last visit. Her
memory is so sharp and never ceases to amaze both Katie and me.
Her acupuncture session went really well and Sadbh
did a great job allowing Brenda work her magic. It was more like acupuncture
pressure rather than needles and Sadbh did not mind at all.
Brenda could tell that Sadbh’s digestion was off so
she also worked on that.
We managed trach care again before bed and Sadbh watched
her old favorite, Kipper the dog during it.
As soon as we finished Sadbh jumped into bed and was
fast asleep in no time at all.
All
the best,
Wayne, Katie and Sadbh
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