Sadbh slept great again last night.
She had quite a few moments of restlessness, but she slept right through until
7:15.
Molly was working early this morning
so Sadbh had a great start to the day, first with breakfast and then with lots
of playtime.
Ali-Baba popped in to say hi and hang
out for a while. She brought cookies for everyone and Sadbh was thrilled as she
loves Ali-Baba’s cookies.
Ali-Baba surprised Sadbh with a gift
of a cool new book called “Nose”. It was an appropriate gift since Sadbh has
two noses, the second being her trach nose.
Sadbh was very excited and showed off
her walking skills and even danced to Nini’s German children songs.
It turned out to be quite the party
and eventually Sadbh was very tired.
Trach care was a little bit stressful
as Sadbh was restless, but Nini and Molly persevered and got the job done.
Sadbh slept for almost two hours and
was ready for a big lunch when she woke up.
We had to cancel her last speech
therapy visit during the last trip to Children’s Hospital as her appointment
with Dr. Inglis went longer than scheduled, however Caryn was able to fit us in
today at 3.
Sadbh was in a great mood and
impressed Caryn with her baby sign skills. She explained that most 12 to 13
month old toddlers typically have only a couple of baby signs figured out and
possibly only one word they can speak. Sadbh has almost 40 baby signs figured
out and she also picks up on words very easily.
Unfortunately Sadbh did not do so
good with the non-modified Passy Muir Valve, so Caryn recommended that we hold
off on using that until after Sadbh’s next bronchoscope visit towards the end
of August. She agrees with Dr. Inglis that there might be granuloma build up in
around her trach within her airway, but she did suggest that we continue to use
the modified PMV multiple times each day. This will allow Sadbh to get used to
the valve and not develop an aversion.
We expected as much, but we felt
comforted in the knowledge that Sadbh is ahead in her baby sign development, so
we know when the time comes for her to speak, it will come very natural to her.
We were hoping that Sadbh would sleep
on the way home from the hospital, but she was too excited with the traffic and
what was going on around her.
You could tell that she was
exhausted, but it took almost an hour to settle her down for a nap. As soon as
she gave in, she dropped off for an hour.
Her evening was spent eating and
taking turns playing with each of us in the living room.
Sadbh is getting very strong and
pushed me out of her way a number of times to get from one side of the couch to
the other. It was funny to watch and it helped tire her out before bedtime.
All the best,
Wayne, Katie and Sadbh.
No comments:
Post a Comment