Sadbh
slept from 8:20pm until 1:30am with her trach cap. This is a huge milestone and
when Katie and I took over from Helen this morning all four of us were jumping
with joy. From when she was capped yesterday morning until it came off at 1:30am
she had her trach capped for over 18 hours!
Caity,
Sadbh’s nurse supervisor, stopped by today to recertify Sadbh. Sadbh always
enjoys Caity’s company and she was very proud of her capping achievement.
Sadbh
and I tried numerous times to leave the house today for a walk and on the third
attempt we got about four blocks away before Sadbh tripped over my foot and
smacked her mouth on the ground. She cut her lip but thankfully did not damage
her teeth. I quickly picked her up and since she was so upset I had to remove
her trach cap so she could breathe properly.
We
high tailed it home to get cleaned up and to make sure that everything was ok.
Once
clean it was time for some ice cream. This did the trick and soon Sadbh was in
a much better mood.
It
started to rain quite heavily so we decided to stay home for the rest of the
day instead. We Skyped with Sophia and Sadbh was over the moon to see her. She
could not stop chatting and even got to chat with Sophia’s parents too.
The
rest of the evening was spent playing and having fun and when it came time for
bed she was exhausted. She did not want to fall asleep with her cap on so Katie
took it off and tucked her into bed. A few minutes after she fell asleep we
slipped it back on and hopefully she will sleep a few hours with it on tonight.
So far, so good.
Sadbh
has her trach three years today. It’s amazing how a little plastic tube can
make such a difference and we are so lucky for it. Hopefully we will not be
marking her fourth year with a trach, but if we are, we will still be very
grateful for it.
All
the best,
Wayne,
Katie and Sadbh.
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