Sadbh slept with the non-modified PMV last night for
a few hours but it caused her to be quite restless. Helen switched the PMV out
for a trach guard to allow Sadbh to sleep soundly and she slept great until
eight when I woke her up.
She was in a very good mood and could not wait to get
up.
We had a busy day planned for Sophia’s final day.
Thankfully Sadbh was helpful and after breakfast we headed off to the Museum of
Flight. Sadbh was thrilled to see all the planes and especially excited to see
the rockets and the training space shuttle. The Museum of Flight is spectacular
but after a while Sadbh got very tired and extremely cranky. She tried to nap
but was way too giddy.
Since there was so much to see and do we kept on and
Sadbh was happy to climb onboard a concord, JFK’s air force one jet and a
couple of other cool airplanes.
Sadbh took a quick nap in the car but was like a
zombie as soon when we arrived home. Sophia and I were able to manage trach
care but Sadbh would not nap afterwards.
Thankfully she had some quiet time and this seemed to
help out. Her mood eventually turned around and she was very happy and playful
for the rest of the evening.
Sophia brought us out to dinner and Sadbh was excited
for some pizza and ice cream. She could not wait and ate her dinner very
quickly in anticipation of receiving “pink” ice cream, which she teased me
with.
We had a fun evening and made it home just in time to
get Sadbh to bed before Helen arrived.
All
the best,
Wayne, Katie and Sadbh
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