All the best,
Wayne, Katie, Sadbh and
Cillian
Thursday, June 30, 2016
Wednesday, June 29, 2016
Tuesday, June 28, 2016
Monday, June 27, 2016
Sunday, June 26, 2016
Saturday, June 25, 2016
Friday, June 24, 2016
Thursday, June 23, 2016
Wednesday, June 22, 2016
Tuesday, June 21, 2016
Monday, June 20, 2016
Sunday, June 19, 2016
Saturday, June 18, 2016
Friday, June 17, 2016
Sadbh’s update – June 17 2016
Today was Sadbh’s last day
of pre-school. I joined in for half her day and Katie joined in for the last
hour. Sadbh was so happy to see us and we got to have fun with her and her
school friends.
We were so lucky to find
such a wonderful school and were so fortunate that her teachers were willing
and able to look after Sadbh considering her special needs.
During the year Sadbh was
asked what the favorite part of her was, she responded and the teachers printed
it up for her.
She said, “My favorite part
of me is my eyes. My eyes can see mermaids. My eyes are pretty”.
All the best,
Wayne, Katie, Sadbh and
Cillian
Thursday, June 16, 2016
Wednesday, June 15, 2016
Sadbh’s update – June 15 2016
We sold Sadbh’s stroller
today after more than five years of use. We originally purchased it before she
was born but it turned out to be one incredible piece of equipment. It
supported her medical equipment, all 2 tonnes of it. And when it failed, the
manufacturer replaced the parts without any issue.
When the new owner came to
take the stroller home it was a bittersweet moment for us. This stroller has a
very important part of getting Sadbh mobile but it was important for us to let
go of it and allow someone else to benefit from it’s use.
It sounds silly but this
device was a pack mule for our family and allowed us to haul everything,
especially our daughter anywhere we wanted to.
Onwards and upwards, as the
saying goes.
All the best,
Wayne, Katie, Sadbh and
Cillian
Tuesday, June 14, 2016
Sadbh’s update – June 14 2016
Sadbh did well and only woke
up a few times due to the sensors on her nose. Katie could not hear any stridor
in her breathing and she was well rested when she woke up.
She was covered from head to
toe in adhesive from the sensors so we gave her a bath as soon as she got home.
Once she was cleaned up,
dressed and fed she could not wait to go to school.
She was a little late
arriving but when Katie walked her into the classroom her best friend, Ellie
Bea, jumped out to surprise her and gave her a massive hug.
We should hear back from Dr.
Inglis in a few weeks on the results from the sleep study and that will
hopefully also provide us with the next set of options to consider.
All the best,
Wayne, Katie, Sadbh and
Cillian
Monday, June 13, 2016
Sadbh’s update – June 13 2016
Sadbh’s sleep study at
Children’s was originally scheduled for this coming Thursday, however we
received a call over the weekend letting us know that an opening came up
tonight. We figured that since Friday is her last day at school it would be
better for her to do the sleep study tonight so she could enjoy her last day
with the rest of her class mates.
She was very excited to go
this time around and both Katie and I were very impressed with how brave she
was.
Check in was at 7pm and by
8:30 she was hooked up from head to toe with all sorts of sensors.
We will not receive the
results for a few weeks but we are looking forward to figuring out what our
next steps are.
I hope she has a good nights
rest.
New photos.
All the best,
Wayne, Katie, Sadbh and Cillian
Sunday, June 12, 2016
Saturday, June 11, 2016
Friday, June 10, 2016
Thursday, June 9, 2016
Wednesday, June 8, 2016
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