Monday, November 30, 2015

Sadbh’s update – November 30 2015


Sadbh had a much better night and her breathing was a lot more relaxed. She did have a few moments throughout the night where her breathing became laboured and we could also hear stridor as the restricted air passed her vocal cords.

Thanks to having night nurses for almost four and a half years, Sadbh is a very heavy sleeper and can sleep through anything. She can even sleep through her baby brother, who likes to wake up and scream his little head off every hour or so until someone gives him some attention.
It would seem that Sadbh was the only one in the house who got a decent night sleep and when she woke up she was well rested and her nose had stopped running.

She had a great day at school and was full of energy when I picked her up.
We spent the afternoon and evening playing and building fun things with her building blocks. She has an etch-a-sketch type toy which she uses to design her structures and it is really impressive the level of detail she goes into on her projects.

Everyone was exhausted come bedtime and it was little surprise that Cillian and Sadbh were fast asleep in no time at all.







All the best,

Wayne, Katie, Sadbh and Cillian

Sunday, November 29, 2015

Sadbh’s update – November 29 2015


Cillian has had a runny nose for the past couple of days and unfortunately Sadbh woke up this morning with her nose running. She had a fairly miserable night and had some serious stridor as she worked really hard to breathe.
Despite having lots of energy throughout the day you could tell she was very tired.

Pops, Katie’s dad, was in town from San Francisco for the holiday weekend and both Sadbh and Cillian had so much fun with him.

They were sad to see him leave this evening when it came time to leave.

I really hope Sadbh has a much better night tonight and wakes up feeling good in the morning.







All the best,

Wayne, Katie, Sadbh and Cillian

Saturday, November 28, 2015

Sadbh’s update – November 28 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Friday, November 27, 2015

Sadbh’s update – November 27 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Thursday, November 26, 2015

Sadbh’s update – November 26 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Wednesday, November 25, 2015

Sadbh’s update – November 25 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Tuesday, November 24, 2015

Sadbh’s update – November 24 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Monday, November 23, 2015

Sadbh’s update – November 23 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Sunday, November 22, 2015

Sadbh’s update – November 22 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Saturday, November 21, 2015

Sadbh’s update – November 21 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Friday, November 20, 2015

Sadbh’s update – November 20 2015


Sadbh had a much better night and woke up in a wonderful mood. We decided to keep her at home as a precaution and she was not too happy about this decision.

She had a great day hanging out with Cillian and I and by bedtime she was completely exhausted.

Unfortunately Katie has whatever Sadbh had. Hopefully she will be better tomorrow.







All the best,

Wayne, Katie, Sadbh and Cillian

Thursday, November 19, 2015

Sadbh’s update – November 19 2015


Sadbh has been very fortunate lately and has been able to avoid catching colds, etc. Unfortunately, she must have caught some type of tummy bug yesterday as she spent the night throwing up. It was fairly stressful, as we wanted to make sure she did not get sick on her neck since she still has an open airway. She is hyper aware of her open stoma in her neck and was very careful when she threw up and made every effort possible to keep her neck clear.

It was a long night and Sadbh was still not 100% when she woke up in the morning. We decided to keep her home from school so she could rest up and get better.
She had a great day and insisted on setting up our little home school so she could learn how to spell and write. We had fun and even Cillian joined in on the action.

Unfortunately, she got very sick again in the early evening which required a huge clean up mission.
She spent the rest of the evening taking it easy and she was in a great mood when it came time for bed.

Hopefully she will have a much better night tonight and that she will be able to go to school in the morning.







All the best,

Wayne, Katie, Sadbh and Cillian


Wednesday, November 18, 2015

Sadbh’s update – November 18 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Tuesday, November 17, 2015

Sadbh’s update – November 17 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian


Monday, November 16, 2015

Sadbh’s update – November 16 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Sunday, November 15, 2015

Sadbh’s update – November 15 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Saturday, November 14, 2015

La mise à jour de Sadbh – November 14 2015 – Photos








Tout le meilleur,

Wayne, Katie, Sadbh et Cillian

Friday, November 13, 2015

Sadbh’s update – November 13 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Thursday, November 12, 2015

Sadbh’s update – November 12 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Wednesday, November 11, 2015

Sadbh’s update – November 11 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Tuesday, November 10, 2015

Sadbh’s update – November 10 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Monday, November 9, 2015

Sadbh’s update – November 9 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian


Sunday, November 8, 2015

Sadbh’s update – November 8 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Saturday, November 7, 2015

Sadbh’s update – November 7 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Friday, November 6, 2015

Sadbh’s update – November 6 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Thursday, November 5, 2015

Sadbh’s update – November 5 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Wednesday, November 4, 2015

Sadbh’s update – November 4 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian

Tuesday, November 3, 2015

Sadbh’s update – November 3 2015 – Photos








All the best,

Wayne, Katie, Sadbh and Cillian