All the best,
Wayne, Katie, Sadbh and
Cillian
Monday, February 29, 2016
Sunday, February 28, 2016
Saturday, February 27, 2016
Friday, February 26, 2016
Thursday, February 25, 2016
Sadbh’s update – February 25 2016
Sadbh had her pre-op
appointment with Dr. Inglis today and we were all excited and nervous.
We discussed how Sadbh often
struggles to breathe, especially when she is tired or upset, and how she has
dealt with colds since she has been trach free.
He was satisfied with
Sadbh’s progress and gave us the green light to have her stoma closed up
surgically.
She is scheduled for surgery
on March 7th and she will stay in overnight for observation.
While we are delighted that Sadbh’s
stoma will soon be closed up and that she will be able to lead a more normal
life, we are still very aware that she has a restricted airway that will limit
her in participating in activities where she over exerts herself.
The procedure that has allowed
her to be trach free has also damaged her voice and now she has a soft whispery
voice and she has to work hard to be heard.
All the best,
Wayne, Katie, Sadbh and
Cillian
Wednesday, February 24, 2016
Tuesday, February 23, 2016
Monday, February 22, 2016
Sunday, February 21, 2016
Saturday, February 20, 2016
Friday, February 19, 2016
Thursday, February 18, 2016
Wednesday, February 17, 2016
Tuesday, February 16, 2016
Monday, February 15, 2016
Sunday, February 14, 2016
Saturday, February 13, 2016
Friday, February 12, 2016
Thursday, February 11, 2016
Wednesday, February 10, 2016
Sadbh’s update – February 10 2016
Today marked Sadbh’s
six-month anniversary of being trach free. What a difference these past six
months have been compared to previously when she needed the trach to be able to
breathe.
She’s been able to go to
school where she is doing great in her academic and social skills. She does not
require the constant medical attention and Katie and I no longer have to carry
her two emergency bags everywhere Sadbh goes. Both these bags weigh 35 lbs.
combined.
Sadbh’s next appointment
with Dr. Inglis is in a couple of weeks and we hope to find out if he is
satisfied with her progress enough to close up the stoma in her neck.
Despite all this progress,
Sadbh often has a tough time breathing and her voice is a lot quieter than it
was prior to the last laser cordotomy where they cut a notch in her vocal cord.
Once her stoma is closed up
she will be able to learn how to swim and will be able to partake in a lot more
activities that having an open airway prevents her from.
All the best,
Wayne, Katie, Sadbh and
Cillian
Tuesday, February 9, 2016
Monday, February 8, 2016
Sunday, February 7, 2016
Saturday, February 6, 2016
Friday, February 5, 2016
Sadbh’s update – February 5 2016
Sadbh slept great all night
and was back in action and well enough to go to school today.
She had a wonderful day at
school and was so happy when I picked her up afterwards.
It was a long day but by
bedtime she was ready to hit the sack. She wanted me to snuggle up with her and
both of us were fast asleep in no time at all.
All the best,
Wayne, Katie, Sadbh and
Cillian
Thursday, February 4, 2016
Sadbh’s update – February 4 2016
Sadbh had a much better
night but we decided to keep her home from school just to be on the safe side.
To make her day fun I
brought her to the Museum of History and Industry. She had a great time and did
not want to leave.
It was a long day for Sadbh
and she did not slow down once.
By bedtime she was worn out
and it did not take long for her to go to sleep.
I’m hoping that she has
another good night and that she can return to school in the morning.
All the best,
Wayne, Katie, Sadbh and
Cillian
Wednesday, February 3, 2016
Sadbh’s update – February 3 2016
Sadbh had another fever
during the night so we gave her Ibuprofen at 4am. She settled back down for two
more hours before Cillian woke us all up.
We kept her home from school
today and overall she had a good day. Her temperature was slightly high but she
was comfortable and in a very good mood.
Her temperature started to
spike in the early evening and she was looking very flushed.
We gave her another dose of
Ibuprofen just before she headed up to bed and she was fast asleep in no time
at all.
We’ve scheduled an
appointment with the doctor for tomorrow morning if she has another spike in
her temperature tonight.
All the best,
Wayne, Katie, Sadbh and
Cillian
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