Sadbh's update - day 110

Aunt Cammy spent the morning, before flying home to Palo Alto, planting flowers and hanging out with Sadbh. 

The rest of the day was spent hanging out with daddy while he worked on repairing the downstairs toilet. Whenever there was progress being made, Sadbh would act up and require attention. 

For dinner, we brought Sadbh to Flying Squirrel Pizza in Seward Park for some excellent pizza. The staff there were very friendly and they all took turns checking out Sadbh and commenting on how cute and adorable she was. 

New photos.

Photos from May 30th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 109

Thursday night was another long night without nurses. Fortunately next weeks schedule is looking a little better and we got word that our nurse from Children's finally received her orientation at the agency today, and the hope is that they can schedule her in as soon as possible. 

Our local Farmers Market is held on Friday evenings only a few blocks away from the house. Since we hadn't figured out what we wanted for dinner, Katie and Cammy decided to bring Sadbh for a nice walk, and to see if they could find any inspiration at the market.

As they were waiting to cross the street to the market, a car ran the red light and collided with another car. Fortunately no one was injured, however both cars were wrecked and apparently there were bits and pieces all over the place along with a lot of smoke. 

Irene and her team from Big Fish were very generous and gave Sadbh a cute little Angry Bird toy and bunch of lovely baby books, during her visit to Katie's office on Thursday. I'm going to keep the Angry Bird toy close by for a comparison when Princess Angry Bird comes on the scene.

As I had mentioned a few days ago, Katie's aunt Cammy came up from Palo Alto to help us out. I snuck out of work an hour early and when I got home Cammy had painted the back porch. She did an amazing job and we are so grateful. 

Things were a little hectic around the house this afternoon as Katie and her mom were about to perform trach care. At that exact same time, the medical equipment service tech arrived to work on the compressor. Unfortunately for him, he had to wait until Sadbh's trach care was completed.

Cammy also made us a fantastic dinner tonight, and Sadbh even got to test out her new bumbo seat while we ate. She didn't last long in it as she was extremely tired.

New photos.

Photos from May 29th.

Have a great weekend.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 108

Last night was a long hard night, especially since we didn't have a nurse. We moved Sadbh up to our room along with all her equipment. Since she didn't have the wedge to sleep in, she was extremely restless and made a lot of noise in her cot. Since we are not used to her sleeping in our room, the whole experience kept us awake for most of the night.

Morning was filled with excitement with all the Leggett girls and Sadbh. Sadbh is so lucky to be surrounded by such lovely cousins.

Later in the morning, Sadbh got to visit Katie's office and met with a lot of the team at Big Fish Games. According to mommy, she had a great time and spent most of the time smiling. 

Sadbh received a cool bumbo baby seat from Aleta today, and at first she was extremely upset when I placed her in it. A few moments later, she calmed down and seemed to start to enjoy it. It was interesting to see how intrigued she was in the plastic tray and all the toys that we placed on it. I'm blown away by how her hand coordination is improving every day.

New photos.

Photos from May 28th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 107

Today was an exciting day for Sadbh. She finally got to meet her first cousins from Singapore. 

Karby, Zhou Jie and their three gorgeous little girls flew in this morning and ended up spending the day hanging out with Sadbh and Katie. Unfortunately, I wasn't there when they arrived, however from what I am told, Sadbh was extremely excited when she got to meet everyone. 

Our fantastic nursing agency is so good, they cannot provide nursing for tonight or tomorrow night. On the plus side, we get to spend each night with Sadbh in our room. 

Tomorrow is going to be an exciting day for Sadbh as she is going to get to visit mommy's office and meet some of the cool people from Big Fish Games.

New photos.

May 27th was the first day that Sadbh got to venture outdoors. 

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 106

Sadbh had a last minute appointment with Dr. Cavanaugh today. She seems to be responding to her treatment much better than previously and the doc is quite happy with this progress.

She has to be the most pampered baby in the world. Seriously!

Katie’s aunt Cammy arrived today to help out and Sadbh was extremely happy to meet her.

I have to admit, the smell of Sadbh is intoxicating. And I’m not talking about diaper smells.

As any parent would contest, the smell of a baby is something to behold.

The fresh clean smell from Sadbh has to be better than anything I have ever smelt. It smells so pure and free of all the toxins that we cover ourselves in.

Anyway, there simply isn’t enough hours in the day to be able to do everything and to be able to spend awake time with Sadbh. Lately, I find that we only have a short window of time when Sadbh is awake after I get home from work. Despite this, we usually have a great time together and it’s fascinating to see her develop and grow every day.

For the past few nights, we have been massaging Sadbh’s belly and legs with a coconut and lavender oil, and it looks like she loves it. Like I said, she’s one pampered baby.

New photos.

Photos from May 26th.

Take it easy,

Wayne, Katie and Sadbh.

Sadbh's update - day 105

Sadbh had a very relaxed day today. Her bout of puking yesterday seems to have passed. Hopefully it was just gas or indigestion.

This evening was spent with a very cheery little girl, we received so many cute smiles and laughs. She even got to experience her first car wash and was so intrigued by the adventure. 

New photos.

Photos from May 25th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 104

Sadbh slept for ten hours last night!! Hopefully, this will be her new sleeping pattern, however I'm sure once we get used to it, she's switch, just to mess with us.

Unfortunately she was a little out of sorts for the rest of the morning. Throughout the morning and early afternoon, she had a tough time keeping her food down. The more often that she got sick, the more stressed mom got, and I think Sadbh then picked up on that stress. 

The rest of the day went quite well and we got to visit Ali-Baba and even got to meet her new 6 week old cousin Evann. Her older cousin Caden even tried to kiss her better. I hope it works! Regardless, it was an extremely cute and sweet gesture.

New photos.

Photos from May 24th.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 103

Saturday was another great sleep in for Sadbh and us. As soon as she work up, it was all smiles, grins and farts. Loud farts! It's amazing how much gas can come out of such a small person. 

The day went quite well and the weather was fantastic. Sadbh got to sunbathe in the shade, out in our back yard. She really enjoys being outdoors and loves looking at the trees, plants and sky. It's very calming for her and as a result, very relaxing for us.

We are also finding that she likes to be naked and when given the opportunity, she wiggles and kicks and smiles in delight. 

Eventually, we had to change out her trach and this took some coordination and planning. Since this is a very serious procedure, we have to make sure that she is in the middle of a very deep sleep and that she should not wake up during. To achieve this, similar to regular trach care, we feed her, then give her approximately an hour of full on play time, get her extremely tired, then bathe her so she is very relaxed. We then swaddle her like a burrito and lay her out on the changing table so she can fall to sleep. 

We also blow oxygen over her trach so it help keep her saturation level topped up and once her heart rate drops to the low 120's, we get to work.

This was the third trach change out for me and I have to admit, I thought it would be easier this time, but it was just as difficult as the first. Everything went well, but it's tough on the nerves and both Katie and my stress levels were through the roof.

As soon as we were done, we went for a nice long walk around Capitol Hill and stopped off for dinner up on 15th. 

Shortly after we got settled in, Sadbh woke up and got very upset. We needed to give her a suction, however the nose was stuck quite tightly on the new trach. The more we had to work it, the more upset she got. Eventually it all worked out but it was a tense moment.

We started chatting to a group of people sitting next to us in the restaurant and it turns out that one of the guys served his residency under Dr. Inglis, Sadbh's ENT specialist. He had nothing but fantastic things to say abour Dr. Inglis and even gave us some valuable facts on his music interests. Everyone doted over Sadbh and raised their glasses to her health and the speedy recovery of her vocal cords. It was a nice moment for both Katie and I, and we were delighted to be out and about with our little girl.

On our way home, we decided to walk by the Capitol Hill block party, to give Sadbh her first taste of live music. It was a mob scene and for the most part, stressed mummy out more than it did Sadbh. 

A quick retreat home and off to bed for an exhausted little girl.

Since she is a lot more active now, and able to move her head from side to side, she is starting to lose a lot of her hair. It's funny though, she's starting to look more and more like daddy every day now that she's going bald and getting a chubby belly.

New photos.

Photos from May 23rd.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 102

Nothing beats sleeping in and snuggling with your baby girl. I took Friday off work, and as soon as the night nurse finished her shift, I brought Sadbh up to bed for a couple of hours snuggling. All in all it was a great day and I was so happy to get to spend it with my little girl.

I haven't experienced spending the day with a nurse in a very long time, and I have to say, it's quite the experience. I feel bad that Katie has to deal with this every day while I'm working. 

Both Ali-Baba and I took care of the trach care today, giving Katie a break from this task. This was the first day that she has not had to do trach care since we left Children's hospital, somewhere in the region of 52 days, so we sent her off to get her nails done.

We meet up with Cormac and his family for dinner this evening. Sadbh wore a lovely dress that she got from her uncle Benny, however Cormac slept the whole time so he didn't notice. 

We went to McGilvra's bar and restaurant in Madison Park, the same restaurant that we brought her to on her first dining experience. On that first occasion, Sadbh had a total meltdown as soon as the food arrived, and due to our inexperience, we quickly paid our bill and left. 

Since then, Sadbh has been fantastic when we go out for dinner, however last night she had another meltdown. She had not slept well through the evening and the restaurant was bright and noisy. This time around, both Katie and I took turns in calming her down and within twenty minutes, she was fast asleep. Thankfully I had ordered a salad, so at least I didn't have to worry about eating my dinner cold. 

Saturday will be spent getting ready to change out Sadbh's trach and I think it will be Katie's turn to insert the new trach. 

Congratulations to Robyn and Darragh on the arrival of their little baby boy Conor!

New photos.

Photos from May 22nd.

Have a great weekend,

Wayne, Katie and Sadbh.

Sadbh's update - day 101

I'm getting concerned. Young Cormac was around looking for Sadbh again today. And according to mommy, Sadbh couldn't keep her eyes off of him. Sounds like I need to have a chat with each of them.

All in all, Sadbh had a very good day today. 

It's great to see how she's developing. Every day it's something new. Lately she's been using her hands and arms more actively, and today it seemed like she was grabbing some of the mobiles above her chair and bed. She still has to work on her coordination, but it's all very impressive regardless.

New photos.

Photos from May 21st.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 100

Sadbh is one hundred days old today. What's amazing is that in some ways, it only seems like yesterday she was born, but in other ways, it seems like a million years ago.

It was a fairly relaxing day since she did not have a nurse looking after her. 

Suzie and Cormac came by for a visit and got to observe Sadbh's daily trach care ritual. 

I'm getting suspicious of Sadbh and Cormac, they seem to be spending a lot of time together. 

I think I will have to keep a close eye on them, especially that young Crean, just to make sure that there is no hanky panky.

The traffic home this evening was terrible, Man United was playing in a friendly against the Seattle Sounders, so everything was backed up. I called Katie to let her know that I would be late, and she placed the phone to Sadbh's ear so I could have a quick chat. Apparently, as soon as Sadbh heard my voice, her eyes grew large and she started to look around for me with a big smile on her face. The funny thing is, usually by the time I get home, I end up being greeted by Princess Angry Bird. 

Ah well, you can't win them all.

Our new nurse started tonight, she seems very qualified and hopefully she will be a good match.

New photos.

Photos from May 20th.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 99

Sadbh had a busy day today. She started off with an appointment with her homeopathic doctor who prescribed "plumbum" in the place of causticum, and hopefully this should help with vocal cords. 

She then dropped in for a visit with Suzie and Cormac before heading home for trach care with Ali-Baba. 

All the while, she was sporting a cute "Kiss me I'm Irish" t-shirt and trendy skinny jeans. 

It looks like our new nurse starts tomorrow night and will work for the next five nights. Fingers crossed she will be a good fit and that Sadbh will like her. Still no news on our nurse from Children's though.

New photos.

Photos from May 19th.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 98

Sadbh had a new nurse drop in today for a meet and greet. Katie got to spend some time with her and it seems that this new nurse has quite a bit of experience with infants with trachs. We are not sure when she is scheduled to start, but we are hoping it will be soon. 

Speaking of new nurses, we are still waiting for the agency to give us an update on when the nurse from Children's is scheduled to start. I can't believe it's taking them so long to process her application. 

Sadbh had a visit with her pediatrician today to check up on a digestive issue that she has being experiencing lately. We have a suspicion that she might have a dairy allergy, however our homeopathic doctor has recommended that we postpone the homeopathic remedy for a while to see if it helps clear things up.

Sadbh's doctor was very pleased with her growth and development and has confirmed that she is developing at a normal rate. Additionally, she is putting on the weight, today she weighed in at 11 pounds, 10.8 ounces. 

New photos.

Photos from May 18th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 97

Sadbh gave us a great nights sleep and did not wake up until after five this morning. Again, once the nurse left, I brought her up to bed and we all got to sleep in for another couple of hours.

It was a fairly lazy day due to the wet weather, but I think that's what we all needed for a change. 

Have a great week.

New photos.

Photos from May 17th.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 96

Saturday was an exhausting day for us all. Sadbh had us up three times throughout the night and seemed to be full of energy. Once the night nurse left, I brought her up to bed so we could all get some rest. 

I have a feeling that the reason she was awake so much through the night, was partly to do with the nurse not fully knowing her sleeping habits and ways to comfort her when she get's restless. 

Anyway, we got some rest and ended up having a great day with her.

We spent the evening over in Theresa and Orla's house for a reception to celebrate Michael and Rosanne's wedding. 

Sadbh got some great snuggle time in with Lydia, Orla and a few others. She also got to spend time with Cora, Luna, Aidan, Clodagh, Conor, Dylan and Cormac. 
A fun evening was had by all, and we made it home just in time for the night nurse. Actually, we were about five minutes late and the nurse was just about jump into her car to leave. Perfect timing. It's annoying to be tied to these schedules, but I suppose it could be much worse.

Summer seems to have forgotten all about Seattle this year so poor Sadbh is not getting to spend much time outside. 

New photos.

Photos from May 16th.

May 16th was the day when Sadbh moved out of the NICU and into the recovery ward. I can't believe that was two months ago. 

By the way, our friend Mich who is cycling down the West Coast to LA has already made it to San Francisco and is having a great time. Fair play!

Congratulations Rosanne and Michael!

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 95

The whole "living with nurses" is getting both Katie and I down. We seem to have a ok group of nurses right now, however every time we have a new nurse, it takes quite some time for them to get to know Sadbh and understand her sleeping pattern, identify when she's hungry and more importantly when she's not. 

It's also difficult when we try to train a nurse on how we want Sadbh cared for. Our goal is for consistency, however its becoming apparent that we are seeing some politics between a few of the nurses being played out. 

It can be quite humorous at times, but more often than not it can be extremely frustrating.

We also don't feel comfortable leaving Sadbh alone in the house with any of these nurses, so that puts a lot of strain on the situation.

Imagine this, you are called down to feed Sadbh at 4am, nothing out of the ordinary there. The last thing you want to deal with at that time of the morning is a full on conversation about local swimming pools and what time they open, and the types of swimmers that use those pools at that time. Or about the Milk Carton Darby at Greenlake and if the rules are being followed and so on. 

Or during the day, while trying to take care of odds and ends, you have a nurse alongside you the whole time, getting into your business.

Say if Sadbh is extra fussy and can't sleep, we can't just pick her up and bring her to bed with us, unless we want the nurse to come also. Instead we have to comfort Sadbh in her room with the nurse in tow.

Having a nurse is very necessary due to Sadbh's condition, and we are grateful for it, but it's so frustrating and exhausting. We both need to figure out how to leverage the nurses to best fill Sadbh's needs, and this is not going to be an easy task.

Friday, Katie and Sadbh decided it was time for a change, so they left the day nurse behind and headed off for a quick coffee break. What was supposed to be a 10 minute trip, turned into an hour and a half. Both felt extremely liberated and had a great time away from the house and the nurse.

Between Sadbh, work, planning for the wedding and everything else, the amount of stress that we are dealing with is incredible. I've never experienced anything like this in my life. 

We had a couple friends over last night for the first BBQ of the season, and it was another reminder of how the times have changed. The babies and toddlers definitely rule the roost and dictate when the parents can eat and relax. 

Fun times.

Earlier in the week I shared a video of Sadbh's crying while she was extremely upset. We really have not heard this cry since, however we are noticing that the sound of air coming out of her mouth and nose is becoming more evident in the last few days. This is normal development since her windpipe is growing and the trach remains the same size. During our last visit with Dr. Inglis, he could not hear this air leak and was concerned that we were not developing on the right track. 

Hopefully he will be excited by this latest development.

New photos.

Photos from May 15th.

Have a great weekend.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 94

Sadbh had another appointment with her Osteopathic Physician today. Apparently it was the best session so far, and he was able to get a good release of fluids around her head and neck. 

I really hope this is going to start helping out soon as it's starting to get fairly expensive.

Sadbh has had her fair share of blow out diapers, but today she had the motherload. It was so bad, Katie even had to change her pants.

This evening, while Katie was running errands, Sadbh and I went for a nice long walk and ended up meeting up with Uncle Neil for dinner at Presse. Sadbh was in great form and needless to say, we all enjoyed out evening out.

New photos.

Photos from May 14th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 93

No big updates to report today. Sadbh had a good day and didn't get too fussy.

We had a set back with the insurance company, our request to change nursing agencies was denied. They didn't think that our reason to move agency was strong enough, however if we wish to appeal the decision, we are welcome to do so. 

At this stage, we have to weigh our options and figure out if it's worth our while pursuing this. 

It sure is a pity that we have to deal with this kind of crap.

Anyway, Sadbh is putting on the pounds, she was wearing a pair of shorts today, and her belly was hanging out over the waistband. Too funny.

New photos.

Photos from May 13th.

Take it easy,

Wayne, Katie and Sadbh.

Sadbh's update - day 92

We didn't have nurses today to look after Sadbh. After the night nurse left this morning, Katie brought Sadbh up to our room so they could both get a couple of hours extra sleep. 

It's actually quite difficult when we don't have nurses. It's impossible to do the simplest of things, like take a shower, etc. since Sadbh requires constant attention. Anyway, Katie did great and the day went well for the most part.

When I got home from work, I took over looking after Sadbh while Katie ran some errands. It wasn't long before Princess Angry Bird arrived on the scene, however I was able to get her calmed down after a while and without getting stressed out.

Lately, when Sadbh gets really worked up, we are starting to hear a little cry. Until now, she cries in silence, not a sound, so it's exciting to hear her cries. Not sure if it means anything, but it seems to be a welcome development.

No news from the insurance company on changing agencies, and no updates on any improvements on the nursing schedule with the current agency. 

New photos.

Photos from May 12th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 91

Sadbh was one little cranky girl today. Not sure what caused it, but she was so upset all evening. It was a serious test of everyones patience and no matter what we did, it wasn't enough to calm Princess Angry Bird. 

I think she was overly tired, and as a result, couldn't be consoled. What worries me when she get's so worked up is that her secretions increase and it could cause her to asphyxiate. She requires constant attention and we end up having to suction her trach every few moments. 

We did get a few photos of Sadbh with her new shades on. Too cute and very cool, if I say so myself.

New photos.

Photos from May 11th.

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 90 Three month birthday!!

Since we did not have a nurse to look after Sadbh on Saturday night, Katie and I decided to try something different. Rather than take shifts staying awake to watch over her all night, we decided to move all her medical equipment up to our room and use the co-sleeper cot that attaches to the side of our bed for her to sleep in. This worked out extremely well and all three of us got a good nights sleep. The hassle of moving all the equipment was well worth it.

Today was a very relaxing day for all three of us. Sadbh had her first visit to West Seattle and was able to enjoy the West Seattle street festival. It was a gorgeous day and the festival was great, however Sadbh decided she wanted to sleep through the whole event. I suppose, at the end of the day, it's not a bad way to spend the day, especially since it's her three month birthday.

New photos.

Photos from May 10th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 89

On the weekends, I take over from Katie for feeding Sadbh during the night. Around 3am on Saturday morning, I got the call from the nurse and headed down to s room to take care of business. She was quite hungry and took to the bottle without hesitation. She has a ferocious appetite and it doesn't take long before the bottle is empty.

After giving her a quick burp, change of her diaper and switching her Oximeter probe to her other foot, it was time for her to go back to sleep. Usually she's quite quick to go back to sleep, but this morning she was full of smiles and giggles, silent giggles.

I worked quite hard to get her to sleep, and after a few minutes I felt quite proud, and even considered that I had developed the knack in getting my little girl to sleep. Just then, she opened her eyes, turned her head to me and gave me a huge giggle. 

Yet again, Sadbh showed me who was boss.

Saturday was a hectic day running errands. Sadbh came along for the ride, and was great the whole time. We are very fortunate that she is such an easy going kid.

Saturday evening was spent at the Crean's, celebrating the homecoming of baby Cormac. It was a great evening and Sadbh had a good time hanging out with her new friends.

New photos.

Photos from May 9th. May 9th is when Sadbh received her treach, however it seems like it was just yesterday. She's been through so much in such a short amount of time, but it's great to see how big she's getting and how well she is developing. 

All the best for now,

Wayne, Katie and Sadbh.

Sadbh's update - day 88

Sadbh had herself another good day today. After her dinner this evening, we headed up to Northgate to run a few errands and then headed out for Sushi with some of the gang. 

Sadbh typically falls asleep fairly quickly when we in the car, however today she was wide eyed and checking everything out. Every so often, she would look over at me and give me a big smile. 

Shortly before we arrived at the restaurant, she decided that she had enough sight seeing and figured it was a good time to take a nap.

It wasn't very long ago when it was just all adults going out for dinner and a couple of drinks. Tonight it seemed that the adults were fairly close in being outnumbered by kids and there might not be enough room for us all. That said, we all managed to cram into one booth, much to the amusement of the staff and other customers.

The insurance company was working hard to get another nursing agency signed up by the end of the day today, however since we never did hear back from them, we are optimistic that we will have this taken care of by Monday morning. 

We do have one nurse scheduled for tonight, but tomorrow night we are flying solo. It's not such a big deal over the weekend since we don't have to work the next morning, but it's looking like we might have a few nights and days without nurse care next week. Hopefully we can get this resolved sooner, rather than later.

New photos.

Photos from May 8th.

Have a great weekend,

All the best,

Wayne, Katie and Sadbh.

Sadbh's update - day 87

Sadbh had a good day today, the highlight of her day was an hour of playtime on the farm play-matt with Ali-Baba. Usually she only lasts 10 to 15 minutes on the play matt before she starts to get bored. It's quite obvious that Ali-Baba has the magic touch.

Sadbh received a new lower sleeping wedge from her Occupational/Physical Therapist yesterday and got to test it out today. She now has more room to move around, and is also positioned lower in her cot. 

We are making some progress with the insurance company. Katie played phone tag today, however we hope to learn more tomorrow as to what the next steps are and how long it's going to take to get another agency online.

Regarding our existing agency, we are currently looking at four nights within the next week that we will not have nurse care. I honestly hope they can pull their heads out and get this situation resolved as soon as possible.

New photos.

Photos from May 7th.

Take care,

Wayne, Katie and Sadbh.

Sadbh's update - day 86

Today was an extremely frustrating day for both Katie and I.

It started off quite well with a great visit with her Occupational/Physical Therapist. Sadbh is developing quite well, and we came away with additional pointers fro further development training.

Out next appointment was with Dr. Inglis, the ENT specialist. Long story short, after looking down Sadbh's throat, it does not look like there are any improvements whatsoever. 

Honestly, I didn't anticipate that there would be much of an improvement, however after coming away from that meeting, the feeling was almost like we were starting the whole process again from scratch. 

From there, things got much worse. While we were in the clinic, we had missed a call from our fantastic nursing agency. Katie had left them a voice mail this morning looking for the schedule for the rest of the week.

Shortly after three this afternoon, we learned that we did not have night nurses to cover tonight, nor the next two nights. What really blows me away is, you would think that this joke of an agency would have the foresight to give us plenty of notice if there were nights that could not be filled. 

After a serious arse chewing from me, we were able to get Thursday and Friday covered, however tonight will have to be covered by both Katie and myself.

Since the day we started with this so called agency, it's been nothing but heartache. We even handed them a fantastic nurse on a silver platter over three weeks ago, and because of their bureaucratic red tape, this nurse is still waiting to start working with us. With all the issues that we have been dealing with all along, you would think they speed up the process so we could improve the situation.

We are both exhausted and fed up with the entire situation. Poor Katie got five minutes of bliss today with Sadbh out in the back garden. The rest of the day she was running and racing to get from one appointment to another and dealing with the agency. I don't know where she get's the patience.

In the meantime, we are waiting for the insurance company to get back to us with an update on if we can work with agencies outside of there network.

New photos: http://www.flickr.com/photos/langer-dan/sets/72157627012188913/

Photos from May 6th: http://www.flickr.com/photos/langer-dan/sets/72157626669169022/

Take care,

Wayne, Katie and Sadbh.