Sadbh was in a good mood for most of the day today. She had a few occasional moments of fussiness, however this was usually very short lived.
As the days go on, it's apparent that she is an extremely mellow baby and seldom get's fussy. She sleeps great every night, waking up only once to be fed.
Katie has been researching vocal cord paralysis and vocal cord paresis (partial movement, but not enough) and is finding quite a bit of information and support online.
After I got home from work today, I read one of the sites dedicated to babies with trachs and came across the following entry. It was a very emotional read, and it gives us some hope. http://www.trachkids.org/members/petersdaddy
Unfortunately, there are a lot of sad stories posted to these sites of children that take a lot longer to heal, and some even have to undergo extensive surgery. For a large number of these kids, it can take up to ten years before they see improvement, and for many, it can be a roller coaster of a ride.
I am optimistic that Sadbh's vocal cords will start working at some point, but I'm not going to get my hopes up that it's going to happen soon.
Our Goddaughter Clodagh, who is just over two years old, has been quite fascinated when we suction Sadbh's trach. In order not to scare her, Katie explained that we were simply sucking out all the boogers, and when she was done, Katie said, all gone, much better now.
Over the weekend, Clodagh was playing with one of her dolls, she placed a straw to her neck and said "here comes the boogers out. Much better".
Too cute!
Check out the size of Sadbh's belly in the bath tub in the following photos.
Take care,
Wayne, Katie and Sadbh.
No comments:
Post a Comment