We have been very fortunate
that Sadbh has been sleeping so well lately and last night was no exception.
Obviously, it makes for a long night for the nurses. We consider ourselves very
lucky to have great night coverage allowing Sadbh to get the consistent rest
that she needs while still keeping a close eye on her to make sure that all her
equipment is running properly and that she is safe and sound.
After a great night sleep
she woke up around 6:15 and was ready for the fun to begin. Sadbh was very
happy and she had lots of fun with Katie.
Caity worked today and since
it was a dry morning they all headed off for a walk to Nora’s Wood. It was fun
to be out and Sadbh enjoyed climbing the rocks and walking along the trails.
When she arrived home it was
time for a spot of dancing and Sadbh had a great time getting down to some of
her favorite nursery rhymes. After a while she noticed that Nana wasn’t there
so she went up to Granddad and said “Nana missing”. Thankfully Granddad knew
where Nana was so they could call off the search party.
By 1pm Sadbh was fast asleep
and ready for trach care. Everything went well and she slept for three whole
hours. She must have been exhausted from such an active morning.
When it came time for bed,
Sadbh was tired but would not go to sleep. She only wanted Katie and it was
quite the challenge to get her off to sleep.
She wore her cap a couple of
times throughout the day today. The first time she tolerated it for 12 minutes
and the second time she lasted 25 minutes. We were hoping to cap her trach just
after she went to sleep but since it took such an effort to finally get her to
sleep tonight we decided against it so as not to wake her up.
We are trying to practice
using the cap as much as possible ahead of her ENT appointment next Tuesday,
hopefully we will get a chance to do it over the next few nights.
All the best,
Wayne, Katie and Sadbh.
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