Sadbh had a wonderful sleep
and woke up at 6 just as Larissa finished her shift.
She had a fun morning
playing with Katie and later she insisted on Katie having a shower so she could
catch up on her favorite show on her iPad, Kipper the Dog.
When it came time for Katie
to head off to work, Sadbh and Granddad followed her outside so she could wave good-bye.
It was a nice morning so
Sadbh and Granddad hung around outside to check out several dogs that were
being walked by their owners.
Kara worked for a couple of
hours today to help out with trach care. Nana held Sadbh’s trach again today
while Granddad cleaned and everything went well.
She slept for almost two
hours and woke up in a very good mood.
Sadbh had an appointment
with Dr. Inglis today to see if there were any improvements with her vocal
cords.
Sadbh was very shy when Dr.
Inglis, his assistant and their intern arrived in the room. She kept hiding behind Katie and myself,
however she did impress everyone by wearing her cap for 50 minutes.
Taking into account that
Sadbh’s bout with pneumonia and an ear infection had set her back a bit, Dr.
Inglis still felt that she was making progress and explained that if we can get
her to tolerate capping her trach all day and night that there is a possibility
that she can be decannulated in the summer.
This will give us time to
practice wearing the cap in the hope that she is ready to have it removed
completely. This is also a better time of year to decannulate as there is a
lower risk of catching colds and flu’s.
Dr. Inglis also feels that
Sadbh has not yet reached her plateau as it relates to her vocal cords healing
on their own and feels confident that we will continue to see improvements over
time.
He did discuss some medical
options, however, he recommended that we keep the trach in for the next few
months with the intent of removing it in a few months.
This was much better news
than what we had expected however we are now focused on capping her trach for
as long as possible to prepare Sadbh for a potential trach free summer.
An hour after Sadbh went to
sleep we capped her trach to see how she would manage. She got very restless
but her heart rate stayed low and her blood oxygen was 100%. Unfortunately she
started to get very uncomfortable after 9 minutes and even reached to pull the
cap off. As soon as I popped it off she fell right back to sleep so we hooked
up her humidifier collar and zipped up her sleep sack.
All the best,
Wayne, Katie and Sadbh.
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