Thursday, July 11, 2013

Sadbh’s update – July 11th 2013


Sadbh woke up very upset after a good night sleep. She was crying in her sleep and the first thing she said was that she wanted to see videos of her cousin Fionn. Katie got her set up on her phone and soon Sadbh was happy watching her baby cousin.

She had a very exciting morning as her new nanny, Mariana, started. It was funny because Marianna, Larissa and Caity, Sadbh’s nurse supervisor, all arrived at the exact same time. It was very intense with a lot going on but Sadbh had a great time hanging out with everyone.

She had a great day and napped for over two hours. She managed to wear her trach cap for a few hours total throughout the day but unfortunately did not wear it when she slept.

In the afternoon she kept talking about Nana and Granddad and after a few calls we were able to get them on Skype. Due to the time difference they had just gone to bed so they had an audience with Larissa and Marianna as well as Sadbh. There is no such thing as privacy when it comes to Sadbh.

She even got to watch Mudhoney playing live on the top of the Space Needle as part of the Sub-Pop 25th anniversary celebrations. She was busy looking for the Weedle on the Needle since it’s one of her favorite books but had to settle for Mudhoney instead.

Katie and I managed trach care this evening just before Sadbh went to bed. She was very tired but stayed awake throughout.
It did not take long for her to fall asleep afterwards.




All the best,

Wayne, Katie and Sadbh.

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