I
was changing Sadbh’s nappy when Crystal arrived last night. We noticed that her
humidifier hose had filled up with condensed water and leaked all over her
pajama top and mattress. Unfortunately, she woke up as I attempted to change
her pajamas and put up a huge fight. She grew very upset and it took an hour
and eventually her Mammy to get her back to sleep.
When
Katie took over, she asked Crystal if she wouldn’t mind going out of Sadbh’s
room while she got Sadbh back to sleep.
Just after Crystal left, the room Sadbh looked at Katie and said “Who’s
that girl there?” It was funny,
but also a bit surreal. We’ve
gotten so used to having nurses in our home, sometimes a simple statement like
this from a 2-yr old brings it all back to our strange reality.
Just
before dozing off, Katie had one of the sweetest moments ever. Sadbh very purposefully dropped her
binkies on the floor. She knew
that she shouldn’t have done this and she immediately said to Katie “You
happy?”. Katie responded that she
was happy and was always happy when she was snuggling with Sadbh. With that, Sadbh reached up, put her
arm around Katie’s neck and said, “oh, I love you so so much”. It was very sweet.
She
was an early bird this morning and woke up just before Crystal’s shift ended at
6. She seemed a little tired so we both headed upstairs so she could snuggle
with Mommy.
When
it came time for Katie to leave for work Sadbh was not too impressed. After a
little distraction Sadbh was soon in a good mood again and it was perfect
timing for breakfast.
Jenna
worked today so the fun and games continued. She had a fantastic time dressing
up in a few different outfits that Nana had brought over last year and even
wore one that was a little too small for her. She is quite the fashionista.
Sadbh
was very tired during lunch so we decided to forego the bath and get her ready
for trach care as soon as possible. For the first time in a while she wanted to
go straight to sleep so I sat with her until she dozed off. Soon she was in a
deep sleep so I bundled her up on her changing table and got her ready for
trach care.
Everything
went well and Sadbh slept on for an hour and a half.
She
was a little cranky when she woke up and did not eat much of her lunch.
The
sun was out so we bundled Sadbh up nice and warm and headed out for a stroll
through the neighborhood.
Sadbh
was fussy the entire time until we came to the pea patch on the way home.
Sadbh
was definitely off form the rest of the evening and was extremely fussy.
Bedtime
was not easy as Sadbh bounced from one side of her cot to the other. She’s
gotten into the habit of pulling her equipment off and even playing with the
monitor camera.
Finally
she gave in and dozed off in Mommies arms, a very tired little girl.
All
the best,
Wayne,
Katie and Sadbh.
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