Sadbh woke up this morning and the first thing she
said to Mommy was “I’m getting married today!”
For the past couple of weeks she has been talking
about wanting to marry her friend Dylan. Dylan and his parents were coming over
for dinner this evening and Sadbh could not wait.
The evening went great and Dylan was more than
willing to tie the knot. Unfortunately, when the time came, Sadbh got shy and
both kids headed out into the garden to play instead.
They both had so much fun but by the time they were
done they were both covered head to toe in dust. Sadbh had to have a bath
before bedtime and thankfully we were able to keep her trach ties dry and not
have to do trach care for the second time. I do not think Sadbh has ever been
this dirty.
We also managed trach change earlier in the day and
Sadbh was wonderful. She did close her neck for what seemed like a few seconds
but I was able to get the trach into her stoma without any difficulty. The
constant daily care that both Katie and I take with Sadbh’s neck and trach has
allowed for a very healthy trach stoma.
All
the best,
Wayne, Katie, Sadbh and Cillian
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