Saturday, May 9, 2015

Sadbh’s update – May 9, 2015


Sadbh woke up bright and early after a great night sleep. For some reason, she was not happy with Helen and wanted to come up stairs as quickly as possible.
As soon as Katie arrived in her room Sadbh’s mood improved dramatically and the rest of the day was great.

Sadbh received her trach four years ago today. It is incredible how this small tube has allowed our daughter to thrive and live a somewhat normal life.
It takes a lot of work for us to maintain her trach and airway and her condition has resulted in us all living in a bubble.
Despite this, we consider ourselves very fortunate and we are well aware of how good we have it compared to so many others.

Katie’s friend, Michelle, stopped by in the early afternoon and Sadbh had a wonderful time playing and talking with her.

Sadbh’s cousins came up from Portland for the evening and Sadbh was so excited. She got to spend the evening playing with Hayato and Lulu and they all had so much fun.

By bedtime she was exhausted and was fast asleep moments after her head hit her pillow.



All the best,

Wayne, Katie, Sadbh and Cillian

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