Last night was much the
same, lots of coughing fits and her blood oxygen dipping down into the low
90’s.
We used oxygen and a saline
nebulizer to help keep her as stable and as comfortable as possible.
Just when we thought we had
everything under control the coughing would start up again. It would typically
last for ten to fifteen minutes and then quite for five or so minutes.
Eventually we had to give
her Tylenol but she freaked out and started to desat again. It took a while to
calm her down and this seemed to help out.
By morning we were all
exhausted. Neither of the kids had much of an appetite for breakfast. Soon
Sadbh’s coughing fits started up again.
She refused to take the
nebulizer and after a couple of melt downs she finally realized that it’s either
us taking care of her or the doctors and nurses at Children’s hospital taking
care of her.
After this realization, she
was the best patient ever for the rest of the day.
By bedtime both kids were
completely exhausted so we gave them a bath and got them ready for bed.
Cillian passed out as soon
as he was placed in his cot.
We gave Sadbh another saline
nebulizer and she fell asleep on the couch with it in her mouth.
All the best,
Wayne, Katie, Sadbh and
Cillian
Sadbh’s update – March 9 2016
– Photos
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