Sadbh’s medication eventually kicked in and she
became a lot more comfortable. Her heart rate, respiratory rate and blood
oxygen levels stabilized however she was still working harder than normal to
breathe.
The on call doctor from Children’s never did
call us back so we decided to bring Sadbh to bed so she could get some well
deserved rest.
Her night was better than expected but when she
woke up she was still exhausted and extremely fussy.
We decided to keep her home from school and
immediately contacted Dr. Inglis at Children’s to schedule an appointment. We
also scheduled an appointment with her pediatrician.
It was a very long day and we spent most of it
the hospital and clinic.
Dr. Inglis discussed three options that we need
to consider for Sadbh since her airway is prone to swelling when she gets sick.
The first option would be to keep her stoma
open a while longer in the hope there is some medical advancement for airway
management, valves that would allow air flow without impacting voice etc.
Another option would be to put the trach back
in to reduce the risk of airway blockage.
The third option would be to consider using a
C-Pap machine for when she sleeps to help keep her air flow where it needs to
be.
We are considering combining the first and last
options.
He want’s to hold off on closing Sadbh’s stoma
for a little longer to see how Sadbh does.
Dr. Hathaway checked Sadbh over to see if there
was a risk of pneumonia and after administering Albuterol she was satisfied
that Sadbh’s lungs were clear and that she was dealing with an inflammation of
her airway. She prescribed Albuterol and advised us to keep up her steroid
usage for the next three days to help keep her airway open as much as possible.
Sadbh was exhausted from the crazy day visiting
hospitals and clinics. By bedtime she seemed to be doing better than she was
last night.
We hope that she has a better night and gets
plenty of rest.
All the best,
Wayne, Katie, Sadbh and Cillian
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