Sadbh had another great night and slept until 6:30. At one point
she woke up and looked at Julie. Julie said “Hi Sadbh” at which point Sadbh
took her binky out of her mouth, said “Hi” and promptly put her binky back in and
lay back down to sleep.
So far it seems that having night nurse coverage throughout the
entire week, rather than a few nights, is really benefitting Sadbh and her
sleep schedule.
She was eager for breakfast and had herself a big breakfast.
Sadbh wore her Passy Muir Valve all morning and when Katie left
for work she got to venture out into the garden.
She had so much fun playing and reading and after thirty minutes
or so it was time to head back into the house.
Ali-Baba stopped by and Sadbh was delighted to see her.
Sadbh got a chance to try out her trach cap and tolerated it for
13 minutes.
Trach care was late today and Sadbh was exhausted. Everything
went well and Sadbh slept for a couple of hours.
She woke up in a very good mood and wanted another bath.
One of the distractions that we use when she wears her cap is
water. Sadbh really enjoys pouring water from one cup to another and generally
splashing around.
Taking advantage of this opportunity, we capped her trach for a
second time and Sadbh had a great time.
She tolerated the cap for 16 minutes this time and she really
enjoyed herself.
The funny thing is that there were four adults and a toddler in
the bathroom.
The problem with her new found love of playing with water is
that any time she hears the water going she comes running wanting to play with
it. Washing ones hands has now become a Sadbh control issue.
When I arrived home, Sadbh was eating her dinner and watching Sesame Street. After she had enough telly it was time to turn it off. Sadbh wasn't too happy about this and started to call "Gerry! Gerry!", her Granddad's name. It was hilarious.
Later on she was in her element playing with Nana so I took a nap on the couch. All of a sudden Sadbh came running up to me, gave me a big kiss and then instructed Nana to do the same.
When I arrived home, Sadbh was eating her dinner and watching Sesame Street. After she had enough telly it was time to turn it off. Sadbh wasn't too happy about this and started to call "Gerry! Gerry!", her Granddad's name. It was hilarious.
Later on she was in her element playing with Nana so I took a nap on the couch. All of a sudden Sadbh came running up to me, gave me a big kiss and then instructed Nana to do the same.
Her evening was spent coloring with her crayons, having fun with
her toys and trying on her new hat and gloves.
She was in a fantastic mood but you could tell that she was
getting very tired.
When it came time for bed, Sadbh was very happy and playful.
Shortly after Katie placed her in her bed she sat up and said, “all done” and
wanted to get back up.
After a few more attempts she finally fell asleep.
At one point as Katie tried to get Sadbh to sleep, Sadbh suddenly started laughing and calling out "Ali-Baba". Katie responded by making the baby sign for Ali-Baba and "silly". She asked Sadbh if Ali-Baba was silly and Sadbh responded "yes" with a smile and a giggle. Then she went off to sleep.
At one point as Katie tried to get Sadbh to sleep, Sadbh suddenly started laughing and calling out "Ali-Baba". Katie responded by making the baby sign for Ali-Baba and "silly". She asked Sadbh if Ali-Baba was silly and Sadbh responded "yes" with a smile and a giggle. Then she went off to sleep.
All the best,
Wayne, Katie and Sadbh.
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