Sunday, September 16, 2012

Sadbh’s update – September 16th, 2012


Sadbh slept in her cute little glow in the dark skeleton pajamas last night and woke up at 3:30am just in time to say good-bye to Nini.
Sadbh’s heart rate and temperature were a little higher than usual and since she was starting to get fussy we got the Tylenol ready just in case.
Thankfully she dropped back to sleep and her heart rate and temperature also stabilized.

Sadbh was rearing to go by 8am so it was off downstairs for breakfast and to catch up on her Baby Signing Time DVD.
Just as Sadbh was finishing up her breakfast both she and Katie heard the baby gate from the basement open up. They were both surprised to see Nini coming through the kitchen again.
Nini’s flight was rescheduled for later in the day so Sadbh was very lucky to get to spend yet another day in her company.

The excitement was incredible and Sadbh had a great time playing with Nini.
Eventually, she started to get tired so it was time for trach care.  Nini and Katie managed trach care together and Katie reflected on how confident and calm Nini was as she cleaned Sadbh’s trach and replaced the trach ties compared to when she first moved here six months ago.

Sadbh slept for an hour and a half and once she woke up we bundled her into the car and headed down to the lake to meet with Ali-Baba and Kirk.

Sadbh had the biggest smile on her face when she arrived at the lake and she really enjoyed going out on the boat for a couple of hours.

Unfortunately, Sadbh was in a deep sleep in her car seat when it came time to drive Nini to the airport.

The emotions were very mixed today with Nini’s two departures and one arrival. Her flight ended up being delayed by over two hours this evening and it looks like she will miss her connection back to Germany. I hope it all goes well for her and that she has a safe journey.

Just before bedtime, Sadbh was playing with her stuffed toy dog and she planted her milk bottle on top of its head. It stayed perfectly placed the first time, however, each time she tried to place her bottle there afterwards, it would fall off causing her to keep trying. It was extremely entertaining and she had a lot of fun with it.



All the best,

Wayne, Katie and Sadbh. 

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