Sadbh’s update – day 235

Sadbh had a great nights sleep and slept until 5:30am Friday morning. Since she was upstairs with us, it was a quick pit stop breakfast, and before she knew it, her diaper was clean and she was back asleep in no time.

Friday was a very busy day for Sadbh. First stop was a visit to her pediatrician’s office for her second flu shot.

The French nurse that takes care of Sadbh is extremely quick and very tender when it comes to giving shots.

She had administered the shot and had the band-aid on before Sadbh knew what happened.

Sadbh cried only for a moment before being distracted by mummy and Granddad.

Katie showed the nurse the video of Sadbh’s voice and she was moved with emotion.

As soon as everyone got home, it was time for trach care.

Since Sadbh had not slept since the morning, she fell into a deep sleep, making it easy to manage trach care.

Early in the afternoon, Sadbh had an appointment with her Homeopathic Physician, Krista.

Our reason for trying out homeopathy is that we are giving Sadbh the opportunity for her body to heal itself and by looking at her vocal cords from a holistic point of view.

Katie showed Krista the video of Sadbh’s last bronchoscope and also of the Sadbh’s cry during our last trach change, and Krista was encouraged by the new development.

Krista prescribed a new remedy of Calcarea (Oyster Shell) which helps with paralysis of the esophagus. Even though this is not specifically a remedy for vocal cord paralysis, it’s good to try this out regardless.

This particular remedy usually suits people that are social by nature, so this is perfect for Sadbh.

Krista and Katie also discussed some of the options that we were considering since our last visit to Children’s Hospital.

Botox that us used for cosmetic reasons, helps stretch out wrinkled skin to it’s nice and taught. Recent studies suggest that prolonged use of Botox can cause extra elasticity resulting in permanent damage.

With this as a potential risk, this helps support our decision not to use Botox on Sadbh’s vocal cords since this could potentially cause issues later in life.

After her homeopathic appointment, it was time to head over to visit Peggy and Kirk

Later in the evening while preparing dinner, Sadbh had great time scooting herself around the floor and trying to the leg from her high chair.

We were prepared for a rough day due to the side affects of the flu shot, however Sadbh had a great day and despite having a higher than usual heart rate, and slightly lower blood oxygen, she did fantastic.

New photos.

Photos from October 2.

All the best and have a great weekend,

Wayne, Katie and Sadbh.