It’s amazing how well Sadbh sleeps when we have that one nurse on shift. She’s an expert in knowing how to keep Sadbh settled in, even if she get’s fussy throughout the night.
Sadbh slept great through the night and didn’t wake up until after 5:30 this morning.
Sadbh had another good day and got to head out for another walk around the neighborhood with my father and the day nurse.
Later on in the evening, after trach care, Katie was giving Sadbh a drink of water using a juice glass and you could see that Sadbh was using her tongue to lap up the water. It was one of the funniest things that I have ever seen her do, and she even thought it was quite funny.
Earlier in the day, Katie e-mailed me a video of Sadbh during her first week and it brought tears to my eyes.
It was recorded in the NICU at Children’s Hospital after Sadbh had been extubated and was breathing with the aid of a high flow nasal cannula.
You could see how she struggled to breath and how her chest cavity compressed so deep while trying to fill her lungs with oxygen.
Not long after that video was taken, she had to be reintubated as she was losing energy and her body was starving of oxygen.
Even though this video was taken almost eight months ago, it almost seems like it happened yesterday. That said, it’s amazing how far she has come and how much stronger she is today.
Take care,
Wayne, Katie and Sadbh.
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