Sadbh slept through the night without waking up once. Her sats
were perfect and her heart rate indicated that she was in a deep sleep all
night.
Sadbh had her 18-month check up with her pediatrician so Katie
and I both stayed home from work this morning so we could bring her to her
appointment.
Sadbh woke up a few minutes after Larissa left at 6am and she
was in a very playful mood. She was cuddling with Katie when I popped my head
into her room and next thing I knew she was running over to give me a big hug.
Not a bad way to start the day.
Audrey started her shift at 7 today and Sadbh was very happy to
see her. With all the people and attention in the house, she could not stop
dancing and running around.
She did not have much of an appetite for breakfast and only ate
half of it.
We did not have much of a wait at her doctors office and before
she knew it she was stripped down and getting measured and weighed. She
measured at 32 inches and weighed in at 22.85lbs, which is a 2-pound gain since
July.
She is 50-percentile in height and weight, however her head
measures in the 90-percentile range.
Her old pediatrician had changed office and moved to a different
part of the city, so Sadbh got to meet her new pediatrician for the first time
today.
She was in a great mood and Dr. Hathaway was very impressed with
how well behaved and corporative she was.
It was very easy to manage her since any time she started to get
fussy, I would point out the window at the freeway below and she would get
excited with the different types of vehicles going by. As you could imagine she
got very excited every time a motorcycle went by.
After a thorough examination, Dr. Hathaway confirmed that
Sadbh’s development was well on track.
Once she was done, it was then time for the nurse to come in and
take care of Sadbh’s shots.
She received a flu vaccination and a shot for Hepatitis A. She
did great right up until the first needle went into her leg and the floodgates
opened. Without the Passy Muir Valve she cries in complete silence, and today
was no exception. It was heart breaking to watch.
Both Katie and I did our best to distract her and eventually she
calmed down.
The nurse did a great job with both shots, but it was still very
traumatic for our little princess.
Her mood bounced back by the time she arrived home and she was
again in a very playful mood.
When it came time for her nap, she was happy to get into her
bath and after she was dried off and in her pajamas it was time for trach care.
Audrey cleaned while my father held the trach in place and
thankfully everything went well. Sadbh slept for two hours.
Once Sadbh was done with lunch, it was then time to get all
bundled up and head out into the garden for some fun.
She had a great time but unfortunately since she has been so
busy picking vegetables over the past few weeks, there wasn’t much more left
for her to harvest.
After Audrey’s shift finished, Granddad and Nana brought Sadbh
up to Madrona for a walk.
Both Sadbh and I had a great game of hide and seek after I
arrived home and she could not stop laughing.
She started wearing her Passy Muir Valve just after 2pm and
tolerated it until just before bedtime. At that time we changed it out for her trach
cap and with the distraction of bubbles, Sadbh tolerated that for almost 15
minutes.
She did a great job and afterwards she wanted to put it back on
so she could play with the bubbles again.
When it finally came to bedtime, Sadbh started to call out her
friend’s names using baby sign. She really needs a play date with them all soon
as I know she misses them terribly. It’s a good thing she has plans to meet
with her friend Conor tomorrow.
Unfortunately it took some serious effort to get her to sleep tonight
and after an hour between both Katie and me, she finally gave in since she was
so exhausted.
We are not 100% sure, but today could have been Audrey’s last
day since she is moving out of state in the next couple of weeks. She is going
to be missed by Sadbh and all of us, but we look forward to seeing her when
she’s back in town in the future. Hopefully the next time she’s in town we will
see her as a friend and not need her as a nurse.
All the best,
Wayne, Katie and Sadbh.
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