Thanks to Larissa, Sadbh slept great and only needed to be
suctioned a couple of times.
She finally woke up at 6:30 and was happy to see Katie.
Despite confirming that we had a nurse working today, the agency
screwed up yet again and actually cancelled our nurse thinking that we were
already covered.
Thankfully my parents were able to look after Sadbh for the day,
but it meant that we had to manage trach care in the evening rather than during
Sadbh’s first nap.
The season has finally changed and even though it was a lot
cooler today, this did not stop Sadbh from getting out into the garden to play
with her toys and to pick tomatoes.
She was all bundled up nice and cuddly and she had a fantastic
time playing with Granddad and Nana.
By noon she was ready for her nap so it was off to bed where she
slept for over two hours.
She woke up with a big appetite and after lunch it was time to
head out for a long walk through the neighborhood.
The low clouds finally burned off and the sun started to warm
the day up.
Sadbh really enjoyed being out and about and she could not stop
waving at everyone she passed.
I arrived home just before Sadbh did and as soon as she came
through the door she ran straight up to me and gave me a huge hug. She had a
massive smile on her face and you could tell that she had an excellent day.
We played hide and seek for the next half hour or so and Sadbh
could not stop laughing.
She about exploded with excitement when Katie arrived home.
After a while you could tell that she was getting tired since
she did not want to leave Katie’s side.
Sadbh received a parcel from her Molly who was her nurse for the
last year. It contained a sweet letter from Molly and a beautiful knitted hat
with a huge flower.
Sadbh looked adorable in her new hat and I’m sure it’s going to
keep her head nice and warm. We miss Molly, but I think Sadbh has a friend for
life.
Dinner was fun but she eventually started to push everyone’s
buttons, especially mine. At one stage she picked up on Katie and me discussing
trach care and she immediately started to slowly pull on her trach while
looking straight at me with a big smirk on her face. She was definitely testing
me, so it was time to distract her with the hope of getting her mind off of it.
When it came time for bed, Sadbh was delighted to get her bath.
It took almost half an hour to get her to sleep and once she was out we started
trach care.
It went well for the most part, but she did start to get
restless when we were securing her trach ties. It ended up being very stressful
since she woke up and would not stop twisting and turning. I held the trach in
place while Katie worked quickly to get everything secure. It really is the
last thing either of us wanted to have to deal with at the end of a busy day.
All the best,
Wayne, Katie and Sadbh.
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