Friday, June 14, 2013

Sadbh’s update – June 14th 2013


Sadbh slept well despite some tossing and turning and managed to tolerate her cap for thirty minutes.
She woke up in a great mood and was happy to see Larissa when she arrived at 8:30.

She had an exceptionally good morning and was not too fussed when mommy left for work. Thirty minutes later she did mention to Larissa that she missed mommy, but other than that she was in a fantastic mood and had a lot of fun playing arts and crafts with Larissa.

All of a sudden Sadbh got a surge of energy and decided it was time to run around the house 15 or 20 laps. She was running so much that her nappy started to slide off.

Amy stopped by to help out with trach care and as soon as they were done Sadbh insisted on Amy rocking her to sleep. She was out within a couple of minutes and she slept great for an hour and a half.

When Sadbh woke up she was shaking and making very strange noises. Larissa ran to see if she was ok only to discover that Sadbh was playing around and laughing to herself.

When she stood up she was pulling at her trach ties and she managed to undo one side. Larissa was quick to react, while remaining calm, and managed to secure Sadbh’s trach tie without making a fuss.

When Larissa’s shift ended her family stopped by to pick her up. She has two adorable kids, the youngest is two days younger than Sadbh. Sadbh and Jameson hit it off straight away, especially after Jameson gave Sadbh a huge hug.
When it came time to leave, Sadbh asked Jameson and Calister to stay and she looked so disappointed after they left.
We need to arrange for some play dates between Sadbh and her new friends.

The rest of the evening was spent playing and having fun. For dinner Sadbh and mommy went out into the garden to pick some lettuce. Our neighbors Pat and Anna were out and Sadbh was excited to see them. She started talking about going to the market and took off walking down the driveway with the basket of lettuce.  Anna showed Sadbh where she is growing strawberries and Sadbh was delighted to pick a few and eat them.

Bedtime was easy as Sadbh was asleep within a few minutes of her head going down.

Earlier this week we lodged an external appeal with the insurance company to overturn the decision to end our homecare nursing coverage.
With the help of our attorney, Dr. Inglis, Dr. Hathaway and Katie’s relentless determination we finally heard back that the denial was overturned. Since we have not yet received a written notification we do not know if the current hours will be affected or not, however we are over the moon that Sadbh will continue to receive the nursing coverage that she needs. Just in the nick of time too as her coverage was due to end on midnight on June 24th.




All the best,

Wayne, Katie and Sadbh.

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