Sadbh’s update – June 2nd 2013

Sadbh is such a diva. She woke up a couple of times during the night while Danielle was trying to cap her trach. Each time she insisted on Danielle removing her cap and then insisted on having her back rubbed until she fell back to sleep.

She woke up at 7:20 and as soon as she realized that Katie wasn’t in the room with her she threw a fit.

I was able to calm her down and soon she was full of smiles and laughter.

For the next hour or so she played with her food and made the biggest mess. Lately she has not been eating much and today was no exception.

After getting dressed we all headed out to Capitol Hill to get the shopping done. Sadbh was happy walking along for the first few blocks but soon wanted Katie to carry her.

We had a great walk and Sadbh was fairly well behaved for the most part.

When we arrived home she was starting to show signs of getting tired so we gave her a bath and managed trach care.

Despite being tired it took an hour an hour and a half for her to finally drop off to sleep.

She tried every trick in the book to keep from going to sleep.

The rest of the day seemed to fly by really quickly.

Sadbh got to spend some time out watering her vegetables in the back garden and when she was done there we headed out for a stroll along the street.

She bumped into Charlotte and her parents who lives up the street. She could not get too close though as Charlotte is sick with a cold.

When we arrived home Sadbh wanted to take off all her clothes. She ran into the bathroom, grabbed some toilet paper and sat on her potty. I was hoping that she might be ready to use it but she was just having fun.

After pretending to go to the bathroom she proceeded to clean herself with the toilet paper.

It was so funny to watch and thankfully she repeated it over and over.

She did not eat much for dinner tonight and was soon sleeping her little head off.

Two years ago today Sadbh was discharged from the hospital. We were finally able to bring our little girl home for the first time since she was born.

Time goes by so fast but every day has been filled to the brim with challenges, fun, laughter, learning how to cope with Sadbh’s needs and being advocates for our princess.

When I loaded up the car two years ago with Sadbh and all her equipment I never imagined all the additional stuff that we were also bringing home with us.
Both Katie and I have learned more about ourselves and each other and have had to rise to meet the challenge. 
I'm so lucky to have such an amazing wife and without her I know it would have been a much tougher road.

New photos.

Photos from June 2 2011.

Photos from June 2 2012.

All the best,

Wayne, Katie and Sadbh.