Sadbh woke up shortly after
2am and spent the next hour and 45 minutes hanging out with Helen. After demanding
a seriously long back massage she finally dropped off to sleep.
It was 8:20 by the time
Sadbh woke up and after a cuddle with Katie it was time for breakfast.
She had a great morning with
Larissa and Amy and after trach care she took a nice long nap.
She had her pre-op
appointment with Dr.Inglis this afternoon so she was rudely awoken by four of
us. She wasn’t too happy to begin with but soon got excited to be heading off
to see her doctor.
The visit went slightly
better than expected and Dr. Inglis went over our options again.
The first option would be to
go forward with her bronchoscopy next week, see how her vocal cords are doing
and then remove any granuloma that has built up around the trach.
Afterwards we would continue
to work on capping Sadbh’s trach as much as possible both day and night. We would
then go in to Children’s for a sleep study. If she does well with the sleep
study we would then be able to work towards possible decannulation.
Our second option would be
to cut into one of her vocal cords to form a notch that would open up her airway
enough for her to breathe without the need of a trach.
The third option would be to
pry open her vocal cords by means of a rib graft. This would also open up her
vocal cords enough to allow her to be decannulated.
We collectively decided on
the first option but realize that there is a potential risk if she gets a cold.
Sadbh was in a fantastic
mood throughout the appointment but could not wait to get home.
We interviewed a potential
nanny candidate not long after we arrived home and she seemed like a good fit.
We have a few more interviews set up over the couple of weeks.
When it came time for bed
Sadbh was exhausted from her busy day. She was out like a light in no time.
All the best,
Wayne, Katie and Sadbh.
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