Monday, June 10, 2013

Sadbh’s update – June 9th 2013


Sadbh slept great and managed to wear her cap for a total of 41 minutes (over two sessions – 33 min and 8 min).  Danielle offered to stay a little later so that Katie could sleep in a bit and Sadbh slept in a little too.  She woke up at 6:40 and wanted Mommy right away.

There was an exciting day planned and the fun got going when Clodagh and Suzie came by later in the morning.  Sadbh and Clodagh played around the house for a while and Sadbh was working on learning how to share her toys.

Ali-Baba arrived soon after and before too long, we decided to do trach care. It took Sadbh a little while to settle down, but Ali-Baba held the phone (to calm and distract her) while Suzie held the trach and Katie cleaned.  Suzie did fantastically (it was her second time and her first time doing it while Sadbh was awake!). 

Sadbh’s neck is very raw and sore and she has one of the biggest breakdowns she has ever had. Katie paid extra attention to it and put two bandages on it to hopefully heal the wounds quickly.  Sadbh was a trooper and although she was a fairly active, trach care went smoothly.

After trach care, Clodagh offered to have Sadbh snuggle up and the two girls watched a little bit of a show together.  A little while later, Sadbh, Clodagh, Suzie and Katie packed up and loaded into Suzie’s car while  Ali-Baba headed home.

As soon as the car got going, both girls promptly fell asleep.  This foiled the plans a bit since we wanted them to have a little rest.  We had been planning to go downtown and walk along the waterfront and visit the sculpture park.  Instead, we headed east and over to Woodenville where, after the girls had a good hour nap in the car, we enjoyed a pizza sitting outside by a water fountain.  Sadbh was over the moon to play with Clodagh and every little thing delighted her. 

After lunch, we went to visit a small farm and Sadbh was able to see her first live horse. Not only was she able to see the horse, she was also able to give him some hay and pet his nose!  It was very exciting and when the horse had a sneeze, both Sadbh and Clodagh jumped out of their skin.  Sadbh scrambled to get away as quickly as she could, running first to Katie and then further away to Suzie.  It was quite the sight.

Shortly after we got home, we had another visit from a very special friend, Michelle.  Sadbh was exhausted, but she managed still to spend a little time with Michelle while she ate some dinner.  After a bath and a quick snuggle with Katie, Sadbh was out in no time.

It was a very special day filled with laughter and fun.  Thanks to Suzie and Clodagh for spending the day with us!

Despite all the fun, after we got home, Sadbh still mentioned that she missed Dada and was very sad.   We still can’t wait for him to come home on Tuesday!





All the best,

Wayne, Katie and Sadbh.

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