Tuesday, August 27, 2013

Sadbh’s update – August 27th 2013


Helen had a breakthrough last night and managed to cap Sadbh for 32 minutes.
Sadbh did well for the most part but grew uncomfortable towards the end.

Sadbh met Larissa at the front down this morning with a beautiful thank you card that she helped mommy make.
Both Sadbh and Larissa had a fun morning setting up a new farm toy that Ali-Baba and Kirk got for Sadbh.
Soon Ali-Baba arrived and joined in on the fun.

They had a great time but when Ali-Baba had to leave it was an emotional good-bye, Ali-Baba headed off to the sound of Sadbh shouting “good bye” at the top of her lungs from the front door. She could still be heard as Ali-Baba turned the corner.

Sadbh wore her trach cap all morning and even forgot about it when she took her nap. She actually fell asleep with it on and lasted an hour before popping it off.

After she woke up she spotted Larissa’s cheese and peanut butter crackers and insisted on having some. Larissa explained that she could not and told her that she did not think that mommy and daddy would like her to eat these. Sadbh responded with “mommy and daddy aren’t here, they won’t know.” Larissa could not believe her ears so she asked Sadbh to repeat what she just said and she told her the same thing using slightly different words.
We are in serious trouble.

It was a very sad farewell when it came time for Larissa to leave. After some big hugs and kisses Sadbh called after her as she walked to her car and as she drove off.
Larissa has been so wonderful to work with and she has taken such great care of Sadbh over the two years working nights at first and then working days for the last 5 months. We will miss her terribly.

Sadbh’s evening was spent playing hide n’ seek and when mommy arrived home she found Sadbh sitting on the couch hiding under a blanket. She sat still for a few minutes pretending not to be there and it was funny how serious she was.

Trach care went very easy tonight and thankfully Sadbh was ready for bed afterwards.
All in all Sadbh wore her trach cap for over 8 hours total today. We are hoping that the recent homeopathic remedy that Krista sent is helping.





All the best,

Wayne, Katie and Sadbh.

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