Sadbh’s
humidifier compressor was acting up during the week and we needed to get a
replacement during the night. Around 1am we checked the pressure settings and
it was way too high so we called the medical supply company. Thankfully their
respiratory therapist was available and delivered a new compressor an hour and
a half later.
As
he was setting up the new compressor Danielle turned on the humidifier a little
too early and it started to alarm. She was convinced that the wiring might have
gone bad so I changed out all the wiring and finally the water cartage because
nothing seemed to solve the problem.
Eventually
I figured out that the wrong button was pressed when Danielle first tried to
silence the alarm and this turned off the heater.
Luckily
Sadbh slept through the whole ordeal.
Katie
took over from Danielle and Sadbh woke up just as Danielle was leaving. She was
in a fantastic mood and was delighted to see Mommy there in her room.
I
woke up as Sadbh approached my side of the bed and asked me if I had a good
night sleep and then she gave me a big kiss. It was so sweet.
She
then proceeded to tell me that she had a poop and it was smelly. I was rolling around the place in
hysterics.
Sadbh
had a nice long bath and afterwards Katie and I managed trach care. She looked
so tired but did not want to miss out on any of the fun so she settled for a
big snuggle with Mommy and before she knew it Ali-Baba was at the door.
Katie
made some popcorn and they were talking about how popcorn and movies go well
together and that Sadbh could go to the movies some day. Within no time, Sadbh had grabbed
a little bag, put her popcorn in and was ready to go to the cinema. Unfortunately, she had misunderstood
and as soon as she realized that they were not going to the movies after all,
she was very upset.
The
ladies all went shopping for a few hours in the afternoon and Sadbh really
enjoyed spending so much time with Ali-Baba. In the car, Sadbh spotted a great big “W” (for the University
of Washington). She immediately
said “W” is for Walsh! She was
delighted with herself and continued to spot different letters from her
name.
She
asked Ali-Baba what her name was.
Ali-Baba responded that her name was Peggy. At that point, Sadbh started explaining that she had been to
a farm and she saw a piggy there and that Ali-baba needed to go to the farm. Katie and Ali-baba thought that was
hilarious and the 3 ladies had a good laugh together.
This
evening she was delirious from the lack of sleep. She had a lot of fun but you
could tell that she could not wait for bedtime.
All
the best,
Wayne,
Katie and Sadbh.
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