Sadbh’s update – January 2nd 2014

Sadbh slept really well but her heart rate started to climb around 5am.

When I took over from Helen at 6 Sadbh’s heart rate was in the low 120’s where she is usually anywhere from the low 80’s to mid 90’s.

She woke up around 7 but fell back to sleep until 8:30 and woke up upset that Mommy had already left for work.

Jenna was back to work but Sadbh did not want to see her straight away. I was able to get Sadbh into a good mood but then we noticed that she was running a low fever.

Despite this she was in a great mood all day and was soon showing Jenna all the new toys that Santa brought her.

Sadbh had a lot of energy but as soon as she had a bath she hit a wall. Her eyes were so heavy and she fell asleep only a few minutes after we started trach care.

We were able to keep her temperature down slightly by giving her Tylenol and Ibuprofen when needed but her heart rate was up in the 160’s as she napped. I discovered later that the Ibuprofen that we gave her had expired by a few months so that obviously did not help keep her heart rate and temperature reduced.

Sadbh was in a fairly good mood for the rest of the evening but had moments when she was fussy and not very happy.

She was excited to see Mommy and could not wait to get some serious snuggles in.

She could not wait to get to bed but it took almost an hour for her to fall asleep.  Just before she fell asleep she said to Mommy “when I wake up, you be here.”  Mommy told her that unfortunately, she would not be here since she had to go to work, but that it was Friday and she would be with her all day Saturday and Sunday.  Sadbh was not too pleased with this response so she came up with her own plan and said “daddy go to work, you stay here.”  Mommy told her that Daddy was going to stay home.  At that point, Sadbh came up with a new idea and she said, “I know, you stay here, daddy stay here, Jenna go to work.”  Then Mommy said “but when Jenna’s here, she is at work.”  At that point, both Sadbh and Mommy started laughing hysterically.  The more one laughed, the more the other laughed and this went on for several minutes, before the two were tired of laughing and they just sat there grinning at each other. 

Hopefully she will have a good night sleep and that she will kick whatever it is that she is fighting.

New photos.

Photos from January 2 2012.

Photos from January 2 2013.

All the best,

Wayne, Katie and Sadbh.