I checked in on Sadbh throughout the night and she
did good until three in the morning. She woke up and shouted for Katie. Since
we have the monitor next to the bed it frightened the two of us but thankfully
she was ok and only wanted Katie to snuggle up with her.
She woke up shortly after seven she was ready for the
day to start.
We did a bad job at planning our day and I caused
most of the issues by spending way too much time on a DYI project in the house.
By the time I had finished we had lost out on the
opportunity to get the kids out of the house and to go for a walk around the
neighborhood.
Trach care also caused some stress as it took an hour
and a half to coordinate a bath and get trach care done afterwards. By the time
we were done we were all hungry and running on fumes.
Sadbh’s check in at the hospital was at seven and it
was a mad race to get out the door in time. Sadbh was in a wonderful mood and
was very excited to be going for a sleep study. I think her excitement was the
promise of getting to watch any movie that she wanted.
Katie and Sadbh made it in time and soon Sadbh was
kicking back in her hospital bed waiting to get hooked up to all the medical
equipment.
There was a huge library of movies to choose from and
Sadbh chose the movie “Tangled”, surprise, surprise.
By the time she was taped up and wired to all the
equipment she was exhausted and like a zombie. It did not take long for her to
fall asleep and I hope she can make it through the night with her trach cap on so the doctors can get some good data.
All
the best,
Wayne, Katie, Sadbh and Cillian
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