Our fantastic agency has done it yet again, no nurse care during the day today, and none for tonight either.
Regardless, Katie and her father took advantage of not having a nurse in tow and brought Sadbh to Fremont to do a spot of shopping and some lunch.
Popi got to test his new trach care skills again today and has been a great help to both Katie and I.
Two months ago today, Sadbh got to leave Children's hospital for the first time. Despite the initial roller coaster ride, and all the issues with the home care nursing, she's come a very long way, in a relatively short time.
All in all, we are extremely lucky that she's such a mild mannered, happy child. The amount of smiles and giggles that we receive on a daily basis totally makes up for everything we have been through.
Take care,
Wayne, Katie and Sadbh.
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