Typically, it's either Katie, myself or a close family member who feeds Sadbh. This is so we can maintain a very strong bond with our little girl, considering all the nursing attention that she receives during the day and night, and this was highly recommended by our occupational/physical therapist, Robin.
Since we were both exhausted, our nurse offered to feed Sadbh throughout the night to allow us to rest up.
Apparently, Sadbh slept until 2am before needing to be fed, and afterwards she was in the mood for some playtime. In an effort not to break Sadbh's current nighttime sleeping and feeding schedule, the nurse tried her hardest to get Sadbh back to sleep. Each effort was met with a flirtatious smile and another invitation to play. Eventually, Sadbh gave in and fell asleep.
She is such a diva, we are going to have our hands full with this little girl!
Tuesday was a very relaxing and calm day for Sadbh.
For the first time in a few weeks, it was very quiet around the house, and I think Sadbh took advantage of this and chilled out for whole day.
After a nice walk around Sewart Park, we headed to Flying Squirrel Pizza for dinner. The temperature was just right so we decided to sit outside. Typically by the time we sit down for dinner, Sadbh is fast asleep. Tonight she was wide awake, happy and very alert. Eventually we had to suction her trach, change out her artificial nose and move her oximiter sensor from one foot to the other. Everything went well and we were able to enjoy dinner with Sadbh sitting comfortable on my knee. When we got up to leave, another customer came up to us and mentioned that he and his wife had a daughter who was born premature and as a result needed a tracheostomy until she was three years of age. He explained that he had observed how we managed Sadbh and was impressed how we handled everything and reassured us that everything will work out.
It was a very humbling moment and despite feeling tears welling up in our eyes, we sincerely appreciated this mans words of praise and encouragement.
Take care,
Wayne, Katie and Sadbh.
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