Sadbh slept great and did
not wake until 6:45. Hopefully she is getting back on track with her sleeping
schedule after the time change over the weekend.
Larissa tried out the trach
cap a couple of times during the night and Sadbh did really well. She tolerated
it for 22 minutes the first time and for 16 the second time.
She was delighted to see
Katie when she woke up. It was time to head up stairs so Katie could get ready
for work and Sadbh got a chance to catch up on Kipper on her iPad.
She drank a lot of milk this
morning for her breakfast but only wanted a small amount of cereal
As soon as Katie left for
work Sadbh had another shot at breakfast and she did much better this time all
while wearing her trach cap.
After a busy morning of
playing with her toys it was time to head out for a walk up to the university
campus. Granddad and Nana were very impressed since she wore her trach cap for
the entire walk.
It did not take long for
Sadbh to fall asleep for her nap when they arrived home. She was out like a
light so trach care was very straightforward.
She slept for two and a half
hours and woke up hungry but happy.
Her evening was full of fun
and she even helped unpack some of her medical supplies that arrived. She loves
to help out, but we have pay attention to where she puts things so we can be
sure to find them.
Before bed, Sadbh decided
that her dolls needed to take their clothes off and use the potty. Katie remembered that when we were at
the Swedish Hospital NICU, just after Sadbh was born and before we were
transferred to Seattle Children’s, one of Sadbh’s nurses packed up a set of
teeny tiny baby nappies, nappies that would fit babies that were born to early.
The nurse told us that some day Sadbh could put these nappies on her baby
dolls. As soon as Sadbh seen the miniature nappies she started to put the
nappies on her dolls. Some of them
were so small that it is impossible to believe a little baby could be that
tiny. Sadbh was quite pleased with herself.
It took an obscene amount of
time to get Sadbh to sleep tonight and just like the last few nights she
insisted on having her back rubbed.
All in all she wore her
trach cap for over four hours today.
All the best,
Wayne, Katie and Sadbh.
No comments:
Post a Comment