It was yet another great
night sleep for Sadbh and she woke up in a very good mood at 6:40 and was
delighted to see Granddad sitting there looking after her.
She had a great morning
hanging out with Granddad and later on we all headed to mass for Easter.
Sadbh loved all the music
and singing and could not stop clapping along with everyone else.
Mass took two hours so we
had to break out a number of things to keep Sadbh distracted and calm. At times
she wanted to go for a walkabout and to explore the church. All in all she did
great and was very well behaved.
After mass we all headed
down to Pike Place Market. The market was packed but we were very lucky and
found a parking spot straight away.
Sadbh could not wait to get
out of the car so she could wander through the crowds.
We picked up a few piroshky’s
and headed over to the park to enjoy the view and have a snack. Sadbh loved her
piroshky and kicked back in her stroller with a big smile on her face.
After a nice stroll through
the market we headed home to manage trach care.
Sadbh enjoyed her bath and
loved having her hair all spiked up with the shampoo.
It took a while to get her
off to sleep but once she was out it did not take us long to manage trach care.
Katie noticed that Sadbh had
been clawing at her neck under the trach ties so we dressed that area with
medical tape to help it heal.
Sadbh slept for an hour and
woke up startled. She looked panicked and checked to make sure that her
humidifier collar was on and then that all her binkies were accounted for.
It was still a lovely
evening so we loaded up Sadbh’s red wagon and the five of us headed off up to
Seattle University for a walk. Sadbh rode along for half the trip but I think
the ride got too bumpy for her so she wanted to get out and be carried.
The campus was very quiet so
we found a park bench and hung out in the sunshine. Sadbh was in her element
and had Katie and Granddad running and racing after her.
There is a lovely church on
the campus and Sadbh loves hanging out with my parents in there. She likes to
talk really loud or even shout to hear her echo. As soon as we set foot in the
door she was off making as much noise as she could. Thankfully we were the only
ones there so she was not disturbing anyone.
She was very tired this
evening when it came time for bed and she only wanted Katie to put her to
sleep.
Thankfully she was fast
asleep very quickly and off on her way to a deep sleep.
She has another new nurse
starting tonight so hopefully she will sleep well.
All the best,
Wayne, Katie and Sadbh.
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