Sadbh had a restless night
and was tossing and turning all night long.
Julie tried the trach cap
for 40 minutes on the first attempt and 20 minutes on the second.
She finally woke up at 6:30
and thankfully was in a very good mood.
Sadbh had a very busy
morning. The nursing agency supervisor stopped by to recertify Sadbh and check out
all her equipment.
Afterwards Sadbh had her
appointment with Dr. Cavanaugh, her cranial sacral doctor. He focused on her
upper torso and Sadbh was not bothered by it.
It was a very good session
and Sadbh was in a very happy mood.
As soon as she arrived home
it was time to get down to some serious playtime. Sadbh even got to explore the
back garden and had lots of fun running around.
Eventually it was time for
her nap and trach care.
Sadbh enjoyed soaking in her
bath and was asleep not long after being dried off and into her pajamas.
Trach care went well and she
slept for two hours.
When it was time to wake up
Sadbh was in a very good mood and also very hungry.
Once her belly was full it
was time for some more play and then she headed out for a walk through the
neighborhood with Nana and Granddad.
The sun had come out and
Sadbh was delighted to be out in the fresh air.
Later in the evening Sadbh
wanted us to take her Passy Muir Valve off. It seems that she was a little
uncomfortable so I took it off and put her humidifier nose on.
After changing her nappy she
got very upset and struggled to tell us something. It appeared to be serious
but since she did not have her PMV or cap on she did not have a voice. We were
eventually relieved when we figured out that she only wanted cake. Crisis
averted.
Last night we learned that
both of our night nurses are leaving. Larissa is looking to move to days and
Julie has accepted a job elsewhere.
We have tasked the agency to
find replacements but we are not expecting positive results based on their
track record.
All the best,
Wayne, Katie and Sadbh.
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