Sadbh
had a very good night and woke up at 7 in a very happy mood.
As
part of our insurance appeal we have also applied for Medicaid and today we had
a scheduled meeting with our case manager from the Development Disabilities
Administration. Even Caity, Sadbh’s nurse supervisor rescheduled some of her
meetings so she could attend, however the case manager postponed the
appointment at the last minute.
This
threw off our morning but Sadbh got some good quality time with Caity, which
was very nice.
Later
in the morning our friend Theresa stopped by for a coffee and Sadbh was very
shy at first. As usual it did not take long before she came around and was soon
driving her toy cars up and down Theresa’s arms.
The
evening got very stressful as Sadbh grew tired and would not do what she was
told. Every time she got fussy she would struggle to breathe resulting in
having to remove her cap.
Unfortunately,
it wasn’t always straight forward as you have wash hands, sanitize and then
remove the cap. This went on for forty minutes or so and by the time Katie
arrived home both Sadbh and I were exhausted.
During
dinner she was still acting up so I had a chat with her to explain who is the
boss etc, in which Sadbh responded with, “no you are not the boss, Mommy is the
boss.” Yup, I can see some fun discussions in the future with this smarty
pants.
Katie
and I managed trach care at bedtime and thankfully Sadbh was very cooperative
so we were able to get it down without any additional stress.
She
was fast asleep within ten minutes of going to bed.
All
the best,
Wayne,
Katie and Sadbh.
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