Sadbh
woke up around 3:45 and asked Kysha to get Mommy. When Katie arrived down Sadbh
was resting in her cot and she informed Katie that she wanted a snuggle. It
took almost two hours for Sadbh to finally fall back to sleep.
She
had a fantastic day and was in a great mood all day. She was excited to get out
and show Sophia the chickens, Koi fish and Nora’s Woods.
We
managed trach care at the end of the day just before bedtime and despite being
worn out we got it done without any problems.
We
found out that our insurance company closed the appeal that we were pursuing so
Katie spent over an hour and a half on the phone trying to get to the bottom of
it. Most of that time was spent on hold being passed along from one person to
another. They have not even assigned a case manager for us, which makes it next
to impossible to get someone to help us. I honestly believe this is a
deliberate tactic of theirs in the hopes that we give up and drop the appeals.
Katie
also learned that the “asshole” so called doctor that represents the insurance
company mislead Dr. Inglis and documented what he wanted to hear rather than
what Dr. Inglis fought so hard for.
It’s
extremely infuriating to think that an insurance company can be so callous in
it’s decisions all in the name of saving money.
Today
I meet with our case manager and nurse from the Development Disabilities
Administration. This meeting went well and once we have the appropriate
documents submitted they will work to get home care nursing set up on their
end. This is one of many angles that we are approaching our issue from and I
hope it can go through as quickly as possible.
All
the best,
Wayne,
Katie and Sadbh.
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