Sadbh woke up just as we got to bed and was not happy until she
was in bed with us. It was another rough night and Sadbh had us awake for most
of it.
She was fully awake by 5 but we stayed in bed for a couple of
hours while she did her best to get us up. By 7 she was saying “all done” so we
knew it was time to get her up and ready for the day.
I brought her down for breakfast so Katie could get some sleep
however Sadbh was not happy so it took a while to get her settled and eating
breakfast.
Granddad was up early and joined in on the fun of keeping Sadbh
happy. Eventually all the hard work paid off and Sadbh ended up having a lot of
fun.
Sadbh has noticed that the windows in the living room have been
full of condensation as a result of the colder weather. As soon as the blinds
are drawn each morning this week she heads into the kitchen, grabs a couple of
towels and gets busy cleaning the windows. She doesn’t do a great job, but its
good enough for her to be able to look out the window.
She got tired around 11 and just after her bath she was ready
for trach care. Unfortunately her skin is starting to get raw under the trach
ties so Katie dressed it and finished off trach care.
Sadbh only slept for an hour and woke up groggy and cranky.
After lunch I capped her trach and she tolerated it for five
minutes. She did great but you could hear her stridor as she breathed so we
finished up and replaced the cap with her nose.
As soon as we were done I bundled her up nice and snug and we
both headed up to Capitol Hill for a walk. She looked as if she was going to
doze off but as soon as we set off she perked up and got excited since she was
outside.
She could not stop smiling and waving at all the cars and
passersby’s.
It’s amazing the amount of smiles she received from people that
pass by. The change in people’s expressions when they see Sadbh is priceless. I
know this is true for most kids, but Sadbh definitely lights up the place.
I was hoping that she would have a nap on the way home but she
was still having too much fun. As soon as we arrived back at the house it was
off down to the basement to play with all her toys down there.
We had a great evening and as soon as Granddad and Nana arrived
home they too got to join in on the fun.
All the best,
Wayne, Katie and Sadbh.
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