With the change in the time due to day light savings, we decided
that Sadbh should start going bed thirty minutes sooner than usual.
It worked out well and she slept great throughout the whole
night.
Larissa worked last night and helped keep Sadbh nice and
comfortable. At one point during the night Sadbh’s heart rate went up to a
level where Sadbh would usually be waking up. Moments later it dropped back
down to a deep sleep and all of a sudden there was a strong smell in the air.
At that stage it was very obvious that Sadbh had to use some energy to pass
wind.
Sadbh was wide awake by 6:15 and as Katie watched her on the
monitor, Sadbh laid there in her cot calling out “Hi” until Katie went in to
take her out of bed.
She had a nice big breakfast and got to hang out with Katie and
Granddad.
Caity was working today and Sadbh was happy when she arrived. I
took the day off of work so Sadbh had plenty of people to play with.
We tested capping her trach a couple of times throughout the day
and each time she managed well for a few minutes. We noticed that her chest
would start to retract after about 3 or so minutes so we removed the cap and
replaced it with her Passy Muir Valve.
The weather was very nice today so Sadbh, Nana, Granddad and
Caity headed out for a short walk. Sadbh had a lot of fun and made it back in
time for her nap. Trach care went well and Sadbh slept for two and a half
hours.
I spent the afternoon playing with Sadbh and we both had a great
time.
Since the weather was still very nice, Sadbh and her followers
headed up to Capitol Hill for a walk.
Larissa is working again tonight so hopefully Sadbh won’t stink up
the room again.
All the best,
Wayne, Katie and Sadbh.
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