Sadbh slept great and entertained Larissa by sleep talking
during the night. She said “dada” a couple of times and when Larissa told me
about this, it brought tears to my eyes.
She woke up moments after Larissa’s shift finished and was ready
for her breakfast.
She had a fun morning by 11am she was ready for her bath and
trach care. It went really well and she slept for an hour and a half.
When she woke up she was still very sleepy and only wanted to
cuddle for a while.
After lunch Caity and Granddad practiced capping Sadbh’s trach.
She did well for a total of 6 minutes but she eventually started to struggle so
she pulled it off.
Katie had e-mailed Dr. Inglis last night to give him an update
on our testing of the trach cap. He was encouraged by how she was tolerating
the sensation of airflow through her airway, nose and mouth and advised us to
keep practicing.
We were fortunate with our timing as he was just heading to
Singapore to lead an operation to insert a rib graft on an older child with
bilateral vocal cord paralysis.
Even though this would not be a solution we would like to use
for Sadbh, it reassures us that Sadbh’s doctor is one of the best.
All the best,
Wayne, Katie and Sadbh.
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