Granddad watched over Sadbh last night until Larissa’s shift
started. She woke up moments before Larissa started. As Larissa walked in the
door she said, “silly Sadbh, it’s time for sleep. With that Sadbh knew the drill
and dropped back down to sleep.
She slept great for the rest of the night and woke up just after
Larissa’s shift ended.
It was a cold went morning so it was a perfect opportunity to
stay in her pajamas. She had a big breakfast and was delighted when Caity
arrived.
Later in the morning the weather cleared up long enough for
Sadbh and her gang to go for a quick walk around the neighborhood. She was
getting tired and had no interest in walking, so she had to be carried the
whole time.
As soon as she arrived home it was time for trach care.
Everything went well and Sadbh slept for almost three hours afterwards.
She was in a great mood when she woke up and was eager to play.
The weather did not let up so Sadbh was housebound for the rest
of the day.
We got to interview a potential night nurse today and both Katie
and I feel that she has what it takes to look after Sadbh. She will hopefully
cover the nights that Larissa does not work, allowing Sadbh to get a good night
sleep 7 nights a week.
Both Katie and I have always insisted that we would not have
nursing coverage on the weekends since we wanted to have some form of normalcy
in our lives. However since Sadbh’s sleeping suffers on the weekends, we feel
it’s a necessary compromise and Sadbh should benefit greatly.
All the best,
Wayne, Katie and Sadbh.
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