Sorry for the delay in posting yesterdays blog, our internet was down...
Sadbh slept great all night and did not wake until 8 on the dot.
She was in a great mood and after getting dressed she was eager for breakfast.
It was a lovely sunny morning and Sadbh got to head out for a
long walk with Nana and Granddad. She wore her Passy Muir Valve the entire time
and she was chatting up a storm.
Sadbh arrived home just in time for Ali-Baba’s visit. The fun
and games continued until Sadbh started to get tired so they got her ready for
a bath and trach care.
Sadbh slept right through trach care, however she only had a
thirty-minute nap and as soon as she woke up she was ready for her lunch.
As soon as her belly was full she was then bundled up in nice
warm clothes and off out for another long walk in the sunshine with Nana and
Granddad.
She really enjoyed being out in the fresh air for the second
time today and they made it back just before it got dark.
Our day nurse is due back from her vacation tomorrow, however we
got word from the agency that she will not be working with Sadbh for much
longer.
The agency scheduled an interview with a replacement nurse this
evening.
Just when you think you finally have all the nursing coverage
figured out, along comes another wrench that sets us back.
Sadbh was exhausted by 6pm and she was very cranky in the two
hour run up to her bedtime.
Unfortunately, our night nurse Larissa called in sick tonight so
Sadbh gets to sleep with us upstairs.
She fell asleep within a couple of minutes of being dressed in
her pajamas so hopefully she will sleep through the night.
Hopefully Larissa feels better very soon also.
All the best,
Wayne, Katie and Sadbh.
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