It
was a good night sleep for Sadbh and she could not wait to see Nini as soon as
she woke up.
Nini
was fast asleep when we brought Sadbh downstairs to her room. Sadbh quietly
walked up to Nini’s bed and as soon as Nini woke up Sadbh gave her a huge hug
and told her that she missed her and that she loved her and she would not let
go of Nini. That has to be the best wake up call ever.
For
the first time in ages, Sadbh ate her breakfast without any issues. It was
because Nini was sitting right across from her eating her breakfast.
As
soon as they were done eating Sadbh showed Nini all her favorite toys and even
showed how she does trach care on some of her dolls.
Sadbh
had her appointment with Dr. Inglis today and as soon as he and his assistant
Pam arrived Sadbh sang Rudolph the Red Nosed Reindeer to them. And she would
not stop singing. She even had her dance moves down, it was hilarious.
Dr.
Inglis was pleased with Sadbh’s progress and mentioned that he did not think
that she was done improving. However he did express concern that he felt that
Sadbh’s vocal chords might not repair on their own and we might need to consider
surgical options. He also mentioned that with corrective surgery she might
still have issues breathing while sleeping and might require a C-pap.
He
supported our decision to stay the course in the hope that her vocal cords will
self correct as we do not want to compromise her voice.
As
we were scheduling our next appointment for April Sadbh started to sing to the
office staff. She drew the attention of a little kid who wanted to give Sadbh a
huge hug. We were caught off guard and were not able to react quick enough to
stop the kid from giving Sadbh a big hug. It was very cute but our efforts to
keep Sadbh from catching a cold could have been greatly compromised in the
moment of cuteness. Fingers crossed she will be ok. It was very sweet all the
same.
Sadbh
had a great evening playing with Nini. Since she did not have a nap she got
tired very early. I fell asleep on the couch next to her and was woken up by
Sadbh as she gave me a big good night kiss and as she threw one of her cute
blankets over me.
All
the best,
Wayne,
Katie and Sadbh.
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