I took over from Danielle just before six and Sadbh had
slept well and managed to wear her PMV for a while. Unfortunately, Danielle did
not document the amount of time with the PMV so we don’t know exactly how long
she wore it for and if she was able to wear her trach cap also.
Sadbh slept in until her usual time of half past
seven and she was in an excellent mood when she woke. She could not wait to get
out of bed and practically ripped her equipment off in doing so.
Mommy arrived on the scene just as we finished
unhooking all of Sadbh equipment and Sadbh was delighted to see her wearing her
glasses and her hair in braids.
The Saturday ritual was just about to kick off and it
started with Sadbh asking to make pancakes.
All in all Sadbh had a wonderful day. We had a busy
time taking care of projects around the house and Sophia helped keep Sadbh
entertained throughout the day.
We got set up for Sadbh’s monthly trach change in the
early afternoon and after prepping Sadbh over the last few days she was on
board to help out. Poppy, Katie’s dad, had sent Sadbh two dolls, one of
Princess Anna and the other of Princess Elsa from Sadbh’s favorite show,
Frozen. We held onto these two dolls to use as bargaining chips for trach change
today and it worked well. Sadbh resisted for a moment when she saw the new
trach in my hand but after chatting with each of us she soon opened up her neck
and allowed me to insert the new trach as soon as Katie removed the old one.
Sadbh enjoyed her evening and she even got to watch
Frozen out on the back deck.
When it finally came time to go to bed she was out as
soon as her head hit the pillow.
All
the best,
Wayne, Katie and Sadbh
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