Sadbh’s sleep study did not go as hoped. She had a
fairly good night but she ended up wanting her trach cap off a couple of times
throughout the night. She slept well for the most part but the nasal cannula
bothered her and caused her to wake up numerous times.
She was in a good mood when she woke up and after she
adjusted to the light, the first thing she said was “this isn’t so bad”
touching the nasal cannula. She was
delighted to go home and she got a hot chocolate, graham crackers and saltines
for the road. She was covered in sticky glue from all the sensors so Katie gave
her a bath and scrubbed it out of her hair and then we managed trach care.
Later in the morning she took a nap and managed to
sleep for a couple of hours with her trach cap on. She was completely exhausted
and did not move the entire time. This was an indication that she did not sleep
properly through the night. We
think it might have been due to discomfort from sleeping in a strange bed and
connected to all the sensors.
That said, both Katie and I were extremely disappointed
with the sleep study and our dreams of a trach free Sadbh seem a lot more
distant than they did prior to the sleep study. Ultimately, we’ll have to wait and see how the doctor
interprets the results. August 14th
is the follow-up appointment.
All
the best,
Wayne, Katie, Sadbh and Cillian
Sadbh’s update – July 14 2015 – Photos
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