Sadbh had a good night and slept for the first few
hours with her trach capped. I think she would have tolerated it for longer but
since we did not have a nurse watching over her it was best to remove it incase
she had any difficulties throughout the night as we slept.
Sadbh was up and full of beans shortly after six. It
is really hard when she wakes up so early as she does not rest through the day
and is at full steam until she goes to bed which is usually close to nine.
It was a scorcher of a day so we met up with our friends
at Greenlake for a splash in the lake to cool off. Sadbh was thrilled to get to
hang out with her friends and she also got to play in the water for a while. It
was nice and refreshing and thankfully it was a lot less stressful than the sea
since there were not any waves etc.
By bedtime the house was like a sauna and Sadbh’s
room was 93 degrees Fahrenheit. It was way too uncomfortable so we moved her
into the basement bedroom since this was at least twenty degrees cooler.
She was still restless and this time she wanted me to
sit with her while she went to sleep. She usually has Katie sit with her but I
think she is afraid of being alone in the basement and feels comfortable if I
am with her.
It took a while to get her to sleep but she
eventually fell into a deep sleep.
All
the best,
Wayne, Katie, Sadbh and Cillian
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