Since we didn't have nursing care Thursday night, Sadbh got to sleep in with Katie well after the day nurse arrived.
Since both Sadbh and Katie are still fighting the remains of a cold or something, it was a great excuse to sleep in and try to beat whatever it is that is bothering them.
Around noon, Ali-Baba came over to spend time with Sadbh and was very helpful with trach care.They even got to dress Sadbh up in her Kimino outfit that she received from her uncle Yuki in Japan.
I've said it before and I'll say it again, we are so lucky that Peggy lives so close and is so helpful with our little girl.
While Sadbh took her afternoon nap, the sun was shining on her face through a crack in the blind. Since we could not adjust the blind any further, I got creative with a couple of her stuffed toys and used them as a sun screen.
Our friends rented a house in Lake Chelan, which is approximately 180 miles away from Seattle, and invited us to joint them for a long weekend. Initially the idea didn't sit well with either of us, due to all the equipment and being so far away if something went wrong.However, since both of us love to travel, we figured that we should go on this trip and push our comfort level to brand new heights.
Typically, the time taken to get ready for a road trip, might be two or three hours max.The time taken to package extra medical supplies, back up equipment parts, and pack the car was 8 hours over two days.We were originally nervous of how Sadbh would do with long drive. It took our friends over four hours to reach the destination, so we decided to leave Seattle later in the evening in the hope that traffic would have died down by then. We were both very impressed with the fact that she slept the whole way without any issues.We were also fortunate that traffic was great and it only took us three hours to get there.
Once arrived, our friends quickly helped us unload the car and I was able to set about getting all of Sadbhs equipment set up in her new room.Everything looked great until we realized that the house was old and the room did not have any three pronged electrical outlets. Not good, since every single piece of her equipment needs to be grounded and requires a three pronged outlet.After a little bit of a scramble, and after searching the house, Fayee found an adapter. I was able to "MacGyver" the adapter and get everything powered up. I'm positive it doesn't meet electrical code, but it's working for now.It took almost an hour to get everything set up and once accomplished, it was time for Sadbh to feed and go to bed.
She was extremely interested in her new surroundings, but did not have any problems getting settled in and falling to sleep.
Have a great weekend,
Wayne, Katie and Sadbh.
Since we didn't have nursing care Thursday night, Sadbh got to sleep in with Katie well after the day nurse arrived.
Since both Sadbh and Katie are still fighting the remains of a cold or something, it was a great excuse to sleep in and try to beat whatever it is that is bothering them.
Around noon, Ali-Baba came over to spend time with Sadbh and was very helpful with trach care.
They even got to dress Sadbh up in her Kimino outfit that she received from her uncle Yuki in Japan.
I've said it before and I'll say it again, we are so lucky that Peggy lives so close and is so helpful with our little girl.
While Sadbh took her afternoon nap, the sun was shining on her face through a crack in the blind. Since we could not adjust the blind any further, I got creative with a couple of her stuffed toys and used them as a sun screen.
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